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Have you had a wedge resection?
MAC & Bronchiectasis | Last Active: Mar 27 5:45am | Replies (24)Comment receiving replies
@knully
I am interested in how you have done with the clofazimine. My pulmonologist wants to add this to my treatment but I’m very concerned about the side effects, especially those related to changes in skin color. What can you share?
Bell
Replies to "@knully I am interested in how you have done with the clofazimine. My pulmonologist wants to..."
@laveita Hi Bell, clofazimine was really hard on my stomach (sharp, stabbing pains), so I have only been taking a half dose throughout most of my treatment. My pulm was okay with this since I’m taking it daily and am on a full dose of the others, plus Arikayce. I haven’t noticed any skin changes on the half dose over the past year, but I know it is a fairly common side effect. Have you heard about the clinical trials for inhaled clofazimine? I don’t think skin changes are a concern with the inhaled version. They had one available in my area but I was unfortunately ineligible since I am taking Arikayce. Might be worth looking into.
Connect
@laveita I am interested in that also as it was discussed for me.