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Interstitial Lung Disease and Autoimmune Diseases
Lung Health | Last Active: Mar 23 10:08am | Replies (68)Comment receiving replies
@loriach
Unfortunately nothing to add here. Still waiting on a diagnosis. Had extreme shortness of breath yesterday after doing a 10k walk, fatigue and frankly dispair. Last night I took an antihistamine and my breathing came back to normal shortly after. I am hanging on to the possibility, although Markers for ILD, that these episodes are allergy related.
Thinking of you and sending much loving care.
Replies to "@loriach Unfortunately nothing to add here. Still waiting on a diagnosis. Had extreme shortness of breath..."
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@narelled23
Thank you for your reply. Know my diagnosis is on the rare side albeit not an official “rare disease” so there’s not alot of data out in the literature. So seek others and their relevant experiences.
Sounds like you’re still seeking a diagnosis. The autoimmune stuff can be so tricky!
Have you been checked for exercise induced asthma? I had this in my early 20s. Was fine unless I worked out and then severe asthma attack. Since my workouts were usually distance cycling, power walking and Nordic skiing outdoors it mostly happened when outdoors but not exclusively. I resolved over a couple years of allergy desensitization shots. Never recurred for me thankfully.
Hope you get some answers soon. It can be so scary to not be able to breathe!
Kind regards, LC