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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: Aug 5 11:11am | Replies (232)

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@ebertolis
My hair has thinned and my gut acts up every so often, which I treat with kefir. If your numbers are moving up take the HU. I wish my onco had started me early as a precaution since my counts kept moving up. My treatment in the hospital probably saved my life as the count moved from 1000 to 1500. I didn't die but I lost my toes from a clot and gangrene. The HU has been scaled back now and my count is 250 for the last year. But the damage is done.

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Replies to "@ebertolis My hair has thinned and my gut acts up every so often, which I treat..."

Hi,@bobt70
I'm awfully sorry for you. I take HU (2x500g/day) now since mid-February.
Best regards.