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Interstitial Lung Disease and Autoimmune Diseases

Lung Health | Last Active: Mar 23 10:08am | Replies (68)

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Profile picture for loriach @loriach

Can anyone with an autoimmune caused ILD comment on their experience with treatments with and without prednisone? Especially as relates to the lung disease component. I’m just going into month 3 post rituximab infusions and have now weaned off prednisone. None for two weeks now. So far my severe ILD has stayed stable without the prednisone. The rituximab usually kicks in about months
3-4 to see how well it’ll work. I’ll see my rheumatologist later this month and Mayo pulmonologist late May or early June. If I need an additional therapy I’d like to try something besides the prednisone as it really did a number on my bone density. Thank you or any insight on your experiences. I’m finding this recent string of ILD postings valuable as I navigate this path!

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Replies to "Can anyone with an autoimmune caused ILD comment on their experience with treatments with and without..."

@loriach
Unfortunately nothing to add here. Still waiting on a diagnosis. Had extreme shortness of breath yesterday after doing a 10k walk, fatigue and frankly dispair. Last night I took an antihistamine and my breathing came back to normal shortly after. I am hanging on to the possibility, although Markers for ILD, that these episodes are allergy related.

Thinking of you and sending much loving care.