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Anyone living with Essential Thrombocythemia with JAK2?
Blood Cancers & Disorders | Last Active: 4 hours ago | Replies (577)Comment receiving replies
I was diagnosed with ET Jak2 in November 2022. I am on 1000mg
Hydroxuria per day, 500 mg did not bring down my platelets. They are
between 400 and 450. I am doing well on Hydroxuria, a couple of times
I had a toothache, my hair is a little thinner now. Could be “old age”.
I am 70 years old, female. A couple of days I got a rash on my ankles and lower legs. After doing some research I started to use Aquaphor. It is helping.
I anybody having the same problem? Any suggestion is really appreciated.
Thank you.
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@ina2022 No rash, but a lot of burning, itching in lower legs and feet, esp at night. Aquaphor is kind of heavy for me, but whatever works! I use CeraVe, which helps. If my feet are really bugging me, I use Benadryl gel (works better than the hydrocortisone cream for me), and I keep a cool water bottle at the foot of my bed to put my feet on if they get itchy and burning in the night.