Anyone have lingering symptoms after pituitary tumor surgery?

Thank you for your response. I have had blood tests since taking the Lanreotide. I’ve had 3 injections since starting 3 months ago and my numbers are within limits while in the Lanreotide. I’m perplexed and disappointed I’m not feeling well 5 months post surgery. Had hoped this would resolve my symptoms. The hyperthyroidism symptoms resolved, sweating, shakes etc, but weakness, fatigue and anxiety remain. Thanks again for the response. Was wondering if this was uncommon. Was looking for some light at end of tunnel.

@getwell88 I am so sorry to hear of your situation. I had a non productive pituitary tumor removed in December/23. Operation went well but since then I have not felt at all well. Head aches especially in forehead. Sinus aches, generally weak and achy joints. No help from the medical people. Please don't take my situation as normal. I believe most people recover very well from this surgery. I trust and pray your situation will improve.
Matt.

@getwell88
My daughter also had a pituitary adenoma secreting large amounts of cortisol.
After surgery it took a long time for the body to adjust to normal hormone levels. She was having pain and fatigue for quite a while. However, with time she was feeling more normal.
I think the same is happening with you. Consider that your body was used to large amounts of 2 different hormones and then after surgery it has to adjust to more normal levels. The hormones affected every cell in your body. I understand that you are impatient but recovery does take time. It’s important that your doctors follow your healing and are satisfied with your test results.
We were not aware either what recovery would be like- we realized that people recovered differently- some felt normal much sooner. Usually, these patients had been diagnosed earlier and had not been exposed to high hormone levels for as long as my daughter had.
My daughter also saw a therapist for a while- someone who understood the difficulties when dealing with serious illness.

@pennieh
I don’t recall how long it took for her to get off hydrocortisone.
She also dealt with other issues caused by the high cortisol levels, such as fatigue and pain.
She had been living with high cortisol for a long time before diagnosis- causing major weight gain, diabetes and tachycardia.
We realized that the doctors couldn’t predict when she would feel ok again. I guess that’s why each patient is different post surgery.
My daughter has a friend who had the same surgery- she recovered quickly. I think she was diagnosed much earlier than my daughter.
Gather as much information you can from different sources.
Also, there are Cushing’s support groups online I believe.