bone pain four months after Reclast Infusion

Posted by newenglandseasons @newenglandseasons, Aug 25, 2024

Does anyone have a story

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I had my infusion of Reclast 10 days ago and I literally can’t move .. my shoulders feel like I have bursitis my left hip and leg down to and including my feet ache severely all night … my body is swollen all over .. it hurts to even move …I walk like I’m on my death bed.. ( I feel like I’m on my death bed)
I have RA so I thought I was experiencing a flare up so I took my prednisone pack.. and it didn’t touch it… I found out that’s because it wasn’t my RA it was my infusion side effects ..
the Dr or the facility giving the infusion never said anything about this kind of pain that could be possible.. my RA Dr said take 2 Tylenol before and after… I wish it would have been that easy.. and Tylenol didn’t touch it!!
I’m still in the midst of it .. I called my dr and she said it should be better in a few days .. so I’m think that would be 2 weeks after the infusion..
I almost went to the ER because I had no idea what was happening to me..
I will NOT be having this again.. I don’t think this should be legal.. if I didn’t know better I would think my Dr. didn’t like me..
If I’m not better by this weekend I’m going other ER to have it documented and see if they have EVER seen this before!
I’m sorry for all of you that have dealt with this.. no one knows the pain unless they have germ through it.. I have e ouch pain with my RA I didn’t want any more!
Praying for this to be gone soon!!

REPLY
Profile picture for annms01 @annms01

I had my infusion of Reclast 10 days ago and I literally can’t move .. my shoulders feel like I have bursitis my left hip and leg down to and including my feet ache severely all night … my body is swollen all over .. it hurts to even move …I walk like I’m on my death bed.. ( I feel like I’m on my death bed)
I have RA so I thought I was experiencing a flare up so I took my prednisone pack.. and it didn’t touch it… I found out that’s because it wasn’t my RA it was my infusion side effects ..
the Dr or the facility giving the infusion never said anything about this kind of pain that could be possible.. my RA Dr said take 2 Tylenol before and after… I wish it would have been that easy.. and Tylenol didn’t touch it!!
I’m still in the midst of it .. I called my dr and she said it should be better in a few days .. so I’m think that would be 2 weeks after the infusion..
I almost went to the ER because I had no idea what was happening to me..
I will NOT be having this again.. I don’t think this should be legal.. if I didn’t know better I would think my Dr. didn’t like me..
If I’m not better by this weekend I’m going other ER to have it documented and see if they have EVER seen this before!
I’m sorry for all of you that have dealt with this.. no one knows the pain unless they have germ through it.. I have e ouch pain with my RA I didn’t want any more!
Praying for this to be gone soon!!

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I would also suggest! I did this for the future record!
FDA.
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.

There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.

REPLY
Profile picture for dannyandebbie @dannyandebbie

I would also suggest! I did this for the future record!
FDA.
For on-line reporting to FDA: https://www.fda.gov/safety/medwatch-fda-safety-information-and-adverse-event-reporting-program
For phone reporting: 1-800-FDA-1088.

There is a lot of information online on Reclast side effects- drugs.com, the FDA and Pfizer's own drug insert: https://labeling.pfizer.com/ShowLabeling.aspx
In addition to the brief info below, Pfizer has a thorough chart with every side effect and frequency reported. Not sure why doctors don't look at this.

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Thank you..
I agree, it needs to be recorded for future records!
I’m going g to look into the info you sent me .. I do so appreciate it!

REPLY
Profile picture for annms01 @annms01

I had my infusion of Reclast 10 days ago and I literally can’t move .. my shoulders feel like I have bursitis my left hip and leg down to and including my feet ache severely all night … my body is swollen all over .. it hurts to even move …I walk like I’m on my death bed.. ( I feel like I’m on my death bed)
I have RA so I thought I was experiencing a flare up so I took my prednisone pack.. and it didn’t touch it… I found out that’s because it wasn’t my RA it was my infusion side effects ..
the Dr or the facility giving the infusion never said anything about this kind of pain that could be possible.. my RA Dr said take 2 Tylenol before and after… I wish it would have been that easy.. and Tylenol didn’t touch it!!
I’m still in the midst of it .. I called my dr and she said it should be better in a few days .. so I’m think that would be 2 weeks after the infusion..
I almost went to the ER because I had no idea what was happening to me..
I will NOT be having this again.. I don’t think this should be legal.. if I didn’t know better I would think my Dr. didn’t like me..
If I’m not better by this weekend I’m going other ER to have it documented and see if they have EVER seen this before!
I’m sorry for all of you that have dealt with this.. no one knows the pain unless they have germ through it.. I have e ouch pain with my RA I didn’t want any more!
Praying for this to be gone soon!!

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I had a similar experience which finally responded to a powerful prescription anti- inflammatory drug. It took 5 days of that drug to get the extreme swelling out of my knees, legs, ankles and hands. I still have more physical pain than I did before the infusion.

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Profile picture for nraeoregon @nraeoregon

I had a similar experience which finally responded to a powerful prescription anti- inflammatory drug. It took 5 days of that drug to get the extreme swelling out of my knees, legs, ankles and hands. I still have more physical pain than I did before the infusion.

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I wish I never had the infusion

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Profile picture for newenglandseasons @newenglandseasons

After the 3rd infusion of reclast i experienced a long period of deep bone pain. This last months and ended as quickly as it started. I have only read occasional mention of others experiencing this side effect. Wondering if there are others out there. I’m needing to consider trying it again.

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@newenglandseasons I just had my 3 rd infusion and my rib cage is killing me!!! Had no issues with the prior ones

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Profile picture for dannyandebbie @dannyandebbie

I wish I never had the infusion

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@dannyandebbie 16 months after my Reclast infusion and I feel the same as you! I am a male in my upper 60’s, retired, received the infusion and it’s been constant pain since! I do find I have to push myself a lot and find the pain less as sharp but creates extreme lameness in both shoulders and arm now as well as my left foot!

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Profile picture for dingus @dingus

I had posted on "Reclast Side Effects." I had the infusion in February 2023. The very next day I had severe shoulder pain. Then the pain went to my right foot. When I tried to stand up from a sitting position the pain was excruciating (I don't use that word lightly). I even got an ex-ray of my foot, but that showed nothing. The pain then went to my bones. It wasn't in the joints. I've had 8 hip surgeries, so I'm very familiar with joint pain. This pain was not in my joints. It was in the middle of my leg, in the bone itself. Also, I'm weak in the legs, tired all the time, have swelling in both feet, pain in my shoulders, foot, leg, toes (bad pain in toes), numbness in right leg, dizziness, cold sweats (unable to regulate my body temperature), and headaches. Two doctors have told me it's not the Reclast. How can it not be the Reclast? I was fine, got the infusion and all hell broke loose. Look on the thread "Reclast Side Effects" where more people share their bad experiences. I'm reading others comments and trying to find a doctor who will at least entertain the thought that it could be the Reclast. Until I find that doctor I won't be able to get any help from a doctor.

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@dingus
I had my first reclast infusion a little over a month ago. I had it at 8:30 in the morning and by 7:30 that evening I was unable to walk. I had to go by ambulance to the hospital and had a weekend stay. My torso hurt so bad and was so weak I couldn’t hold myself up to even use the bathroom. I had to be on oxygen while I was in there and had a fever. They checked me for Covid and the flu but wasn’t either. Fast forward to tonight I all of the sudden have been having body pain again the only thing I feel it could be is from that infusion. I thought I already had the reaction I was going to have. I will never have this crap again!!

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Profile picture for lo62 @lo62

@dingus
I had my first reclast infusion a little over a month ago. I had it at 8:30 in the morning and by 7:30 that evening I was unable to walk. I had to go by ambulance to the hospital and had a weekend stay. My torso hurt so bad and was so weak I couldn’t hold myself up to even use the bathroom. I had to be on oxygen while I was in there and had a fever. They checked me for Covid and the flu but wasn’t either. Fast forward to tonight I all of the sudden have been having body pain again the only thing I feel it could be is from that infusion. I thought I already had the reaction I was going to have. I will never have this crap again!!

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@lo62 I find that it can and does linger for months! I’m feeling some better as far as shoulders but some nights I wake up 3-4 times and now my arms and hands feel like needles at times along with the constant ache! It has been 16 months, hopefully things will improve over time!

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I had first Reclast infusion in Dec 2025. I drank lots of water, took Tylenol and felt fine after the infusion, just some fatigue. About a month later the low back and hip pain started. Then it moved to my middle back and knees. A little over two months now and still experiencing this pain. When I was put on Actonel in Nov 2022 (weekly dose) I experienced severe low back pain about 1 1/2 months out from starting the medication. I had never had any back problems in my entire life before the Actonel. The debilitating pain subsided after about a month but some pain was intermittent until I went on a drug holiday for all of 2025. My endocrinologist never mentioned bone/back pain as a side effect from Reclast to me. I am 57 and do have some diagnosed arthritis (wrist, knee) and psoriasis. I don't know if there is any connection, but I feel that there needs to be a more comprehensive review of a patient's existing conditions by treating doctors when prescribing this medication. I am osteoporotic so I am just hoping that my next Dexa in Nov 2026 will show improvement.

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