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Non-Length Dependent Small Fiber Neuropathy
there is much discussion of PN but seldom is much said about non-length dependent neuropathy. I guess it must be relatively rare. The condition affects all different parts of the body. I think it is usually idiopathic as is mine is. I was diagnosed with it more than 10 years ago. I’d like to hear from others with this type of small fiber neuropathy.
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Yes, I have SFN, but wonder of wonders, I have no pain. Mine was brought on by Sjogren's Disease. But it did effect my large fibers (autonomic nervous sistem) and now my feet don't know where they are. (I run into doors alot.) No numbness, either. It took months for my Spanish Mustang to get used to the new me.
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1 Reaction@sf2021 My GP just diagnosed me with this yesterday. I am waiting on all the blood work to come back that may rule out any autoimmune disorders. My pain and off sensations are localized to my left cheek and the middle front of left thigh. It is extremely odd to me how it only affects two completely unrelated areas. I can't comment on your questions but interested in how you are now coping since some time has passed.
@ahungness
Hi, I believe I have non-length dependent small fiber neuropathy. Mine travels to different parts of the body - sometimes left hand, arm, rib cage area but most consistently left side of the face and my tongue. My pain level has subsided (not gone) over the years (keeping my fingers crossed) and got off all meds (gabapentin and duloxetine). I manage it through acupuncture, diet and exercise. I hope this helps. It can get better.
@sf2021 mine comes and goes, thankfully not constant, and at this time doesn't require meds. I'm glad you found relief.