Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for marcd2k @marcd2k

Hello everyone, Marc here, just signed up last week for this message board. I had Lumbar Spinal Fusion surgery at L5-S1 back in November, and my back pain was much less than I expected as I started my recovery. However, there is a second medical issue my doctors are still trying to figure out after the surgery did not get rid of all of my pain.

The muscles in my right flank/oblique area have been locked in a permanent spasm, and any physical activity, such as physical therapy exercises and stretches, causes these muscles to cramp, like having a calf cramp in your side. This has slowed my recovery down quite a bit, as I am not even driving yet 3 months after surgery, never mind exercising. I have a stick-shift vehicle, so using both legs continuously will create a risk of my right side locking up while I'm driving.

So, my wife has been driving me to my appointments, and I'm basically disabled at home, because I cannot do the simplest things around the house without having a lot of pain that the only relief for is laying on my back. I have very painfully sore heels from all of this laying in bed every day, and no one has any idea what is causing my muscles to permanently spasm.

Good luck, everyone!

Jump to this post

@marcd2k
Thinking of you with all you've been through. Your post is helpful to others. I wonder if you have Heel Protectors? They are thick and soft, just strap over your foot and keep your ankles from pressure. If you have a good pharmacy, they might have these in their section for surgery/recovery. Or, ask your doctor and they might be covered.
Hope you feel better soon.

REPLY
Profile picture for jw9 @jw9

@marcd2k
Thinking of you with all you've been through. Your post is helpful to others. I wonder if you have Heel Protectors? They are thick and soft, just strap over your foot and keep your ankles from pressure. If you have a good pharmacy, they might have these in their section for surgery/recovery. Or, ask your doctor and they might be covered.
Hope you feel better soon.

Jump to this post

@jw9 Hello, jw9, and thank you for your kind message. I do not have heel protectors, I will definitely look into this. Have a great week!

REPLY

Hello
I was diagnosed with moderate/ severe Spinal Stenosis last Oct, with an MRI, having a lot pain in buttox and down leg since May. Recently starting to get tingling in leg and foot. I did PT and Dry Needling for last 5 months along with 1/2 Tramadol and 2 Tylenol and 1 advil daily, with minor relief. I take 3 RX at fairly high doses for high blood pressure and very skeptical to get a Steroid Epidural for that reason. Had anyone had any relief from Cymbalta or any other RX? I am female 73 yrs old.
Thank you

REPLY

Hi, my name is Marleina & I recently found this group. In 2012, I had spinal fusion surgery for scoliosis. I was 63 years old. I left the hospital with two rods & 20 screws in my back. Since that time my pain has escalated to the point that I don’t go out very much. I’m thankful for this group.

REPLY

I am Susie. I have chronic pain caused by nerve damage. I also have chronic fatigue syndrome, chronic IBS, and anxiety.

REPLY

My name is Cindy, I am 64 and new to this group. In September last year I had unbearable pain going down my left side and my foot was numb.
I couldn’t get comfortable so I was admitted. I was told I had sciatic nerve pain.
Since then I’ve done>PT, acupuncture, gabapentin, lyraca , at least 3 MRI’s, nerve conduction test. Met pain management group, who absolutely did nothing! I never even saw a Doctor and they wanted to put some kind of spacer in my nerve surgically to relieve pain. It was a proposed option.
I tried to explain I have a bleeding disorder, is there a risk? Keep in mind we are only talking to a nurse practitioner each time. WHO honestly had to grab her phone to google certain things because she couldn’t answer our question and concerns.
At this point I feel hopeless. Will I ever be able to walk any great distances again? Will I ever be pain free?
I did see my pcp today, and I trying to find another pain management group. What do they do? Ugh just so discouraged.
What prompted this sciatic pain. This can’t be something I have to live with, is it?

REPLY

Hi . I have chronic pain after a fall down the stairs and a t 11 spinal fracture 2 years ago. I can't take anti inflammatories because I am on blood thinners. I also have osteoporosis. I don't take any bone medication because of their side effects, but I think I will have to start taking something. Can anyone recommend the safest bone medication please. I know that they all have side effects especially prolia which I won't go back on. I was put on it years ago when it was first on the market, I was only in my fifties and I wasn't informed about it's side effects. I stopped it for dental work not knowing at the time that my bones would lose more density by stopping it. I have just turned 70 .
Thank you for reading this and any advice is welcome.

REPLY
Profile picture for ailsas @ailsas

I am so sorry about these horrible side effects. Surgeon gave you pinched nerves. Keep calling. If not warned such possible effects get other doctors and a lawyer.

Jump to this post

@ailsas I did call my doctors office about all the pain in my legs after SI Joint surgery. They did call back after a few days and told me it was the medication they used to put me to sleep. I really don't think so because I have had many surgeries and that never happened with the gas.
It was not just a little pain, it was severe.

REPLY
Profile picture for cghernand @cghernand

My name is Cindy, I am 64 and new to this group. In September last year I had unbearable pain going down my left side and my foot was numb.
I couldn’t get comfortable so I was admitted. I was told I had sciatic nerve pain.
Since then I’ve done>PT, acupuncture, gabapentin, lyraca , at least 3 MRI’s, nerve conduction test. Met pain management group, who absolutely did nothing! I never even saw a Doctor and they wanted to put some kind of spacer in my nerve surgically to relieve pain. It was a proposed option.
I tried to explain I have a bleeding disorder, is there a risk? Keep in mind we are only talking to a nurse practitioner each time. WHO honestly had to grab her phone to google certain things because she couldn’t answer our question and concerns.
At this point I feel hopeless. Will I ever be able to walk any great distances again? Will I ever be pain free?
I did see my pcp today, and I trying to find another pain management group. What do they do? Ugh just so discouraged.
What prompted this sciatic pain. This can’t be something I have to live with, is it?

Jump to this post

@cghernand Hi Cindy, I was told for 20 years that my back pain was from Sciatic nerve pain from my low back. They were wrong. I was treated for 20 years with not much relief. I then went to a new doctor and found out is was my SI Joint. They put a spacer in my SI Joint and the pain went away. A week ago I had the other side done and not sure about it yet. You have to give it about 6 weeks to see if it works well. I would certainly find another doctor, NOT a Nurse. One with a lot of experience. Best.

REPLY

Thank you, good to know!

REPLY
Please sign in or register to post a reply.