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← Return to New to Hydrea for ET
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@loribmt
Thank you for the professional reply, and hope you are a real person and not AI :-0).
I do not take aspirin of any kind as it upsets my stomach no mater, coated, with food, uncoated, baby dose, etc. Taking the HU every-other-day makes dosing a little trickier. And i hope to go to M, W, F.
No one ever told me to stay out of the sun...........is that a thing on HU?
Thanks again,
Replies to "@loribmt Thank you for the professional reply, and hope you are a real person and not..."
@jodyjazz
Yes it is a thing. I am hard to tan burn only. My first week on HU I didn't think it would hurt didn't realize that after 4 days the HU would cause me to burn. But I wore a tank top to help move some furniture with my family it took about 4 hours well my arms and shoulders got red not much but I learned that lesson fast. I have already had some pre skin cancers removed. I too bought some of the long sleeve shirts with SPF for the summer. Good Luck
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Good morning, @jodyjazz. Nope, I’m not AI generated though I am genetically modified. 😂 (Had a bone marrow transplant several years ago so I’m a chimera with 2 sets of DNA). But my brain is still ‘mid-century modern’…vintage but semi-functional. ( And for the record, I do not use AI for my answers)
I can relate to your problem of taking HU every other day. The schedule gets complicated. What helped me was to make a very small calendar of sorts that I taped to the top of my pill box. I basically drew my own graph paper with 7 sq across for the labeled days of the week. With 5 rows down to equal the month. Then I’d schedule for the month by going through each week putting an X in the alternating squares where I would need to take the pill.
When I took the pill I’d scribble over the X or put a red dot or whatever, to note that the deed was done for the day.
Hydroxyurea is one of many medications which can cause photosensitivity to the sun. Usually that’s fairly well noted on the informational sheet that comes with the prescription. You can still be out and about in the fresh air and sunshine, but it’s important to cover up where you can, cute hats, loose blouses or SPF clothing, use sun screen liberally and to minimize the worst exposure during the strongest sun hours of 10 AM to 4PM. It is a thing. ☺️
If you’re interested, here’s a guide to help you choose a safe, effective broad spectrum sunscreen. From the EWG Environmental Working Group https://www.ewg.org/sunscreen/
Life is full of little challenges. But thankfully we humans are adaptable. So, while this ET/HU business is new to you, you’ll soon fall into a rhythm and it will be 2nd nature to pop the pill when needed, grab a cute hat, slap on the sun screen and off you go!