Severe, debilating pain 10 months after anterior hip replacement

Posted by nise2uss @nise2uss, Mar 11, 2019

I had bilateral anterior replacements in 2018. My right hip was replaced in March and I did great but my left hip was replaced in May and I have not yet recovered and if anything feels worse. My ortho dr doesn’t know what is causing the severe pain in my groin, anterior and posterior thigh, pain at surgical site, pain down lateral thigh into lower leg, upper buttock, weakness when lifting leg etc. I have had multiple hip flexor tendon injections with no relief. The nerve conduction test showed aural neuropathy in my lower legs. MRI showed basically nothing but trace fluid both hips which my dr says means nothing. Xrays show nothing. I do not have a clue where to go from here. I am also 49 years old trying to work while taking multiple pain medications to manage my pain. I have read an article by Nathan Staff at the Mayo Clinic that discusses inflammatory neuropathy and feel this may be the culprit. My ortho dr actually asked me if I were crazy one of the many times I have returned to his office. He mentioned a surgical procedure to release the hip flexor tendon but isn’t sure if that’s the problem. I’m just not sure where to turn. I would also mention that I take Indomethacin for gout periodically and it helps me manage the hip pain at time along with the other drugs I am forced to take just to be able to walk. Any ideas folks?

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Profile picture for nise2uss @nise2uss

Thanks for the reply. Yes I have tossed around the idea of a second opinion and feel this may be my best option. I have not discussed the Mayo Clinic article on inflammatory neuropathy with my surgeon at this point as I am trying not to overstep. This guy has the reputation of being the best around in his field of joint replacement and is very confident. Unfortunately I am not sure where or which direction to go for a second opinion. I live in North Carolina but I’m not opposed to traveling. I just want to feel better.

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@nise2uss
I too was unable to lift left leg after anterior replacement. It was my iliopsoas which was cut and now I'm doing ok.

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Time to research for a new Doc. Of course your first stop was to the original surgeon….but no matter what his skill level is it’s time to move on. A Doc that asks are you nuts isn’t someone you want. Remember…he/she
“works” for you and it’s their job to “listen and find”.

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Profile picture for redbeets @redbeets

How does the Dr. determine you need a revision? Are they surgeons that identify their specialty as revision? . Most surgeons are not anxious to have anyone review their work for corrections. They are not eager to give you a name of anyone that will look at it either. Wish you luck. The third times the charm

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@redbeets YES! There are Docs known for their revision skills! I go to the Cleveland Clinic as that’s what’s closest to where I live. On their site most Docs in their directory have a bio and many a personal video. I use this as well as read ALL their reviews and have been successful at getting great docs . Do your research and find someone who talks and has positive reviews on what you’re looking for. BTW… I have a son who is a doctor and he tells me a doc that doesn’t welcome you getting a second opinion is not the doc you want to go to! Good luck in your search.

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Profile picture for redbeets @redbeets

How does the Dr. determine you need a revision? Are they surgeons that identify their specialty as revision? . Most surgeons are not anxious to have anyone review their work for corrections. They are not eager to give you a name of anyone that will look at it either. Wish you luck. The third times the charm

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I saw a specialist who specializes in hip revision. He ordered a hip scan with contrast. Said all was ok and sent me along the way without any advice. Now disabled, but surely some wizard doctor knows what happened to me! Any help out there?
Thanks!

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Profile picture for merglia4281 @merglia4281

Thanks for the details on the exercise ball. I had the third hip operation on same hip , two within this last year. First two posterior and this last one, anterior.They replaced the longest rod available. It has been four weeks since the last operation. PT doesn’t seem to help at all. I have an 8 week appointment, but am very disappointed in my progress. Cannot sleep because of the pain. Pain meds have no affects and make me very barfey and icky feeling all day. My surgeon is well known in this area and his specialty is hip revision so he thinks I should expect pain for sometime. Thanks for sharing.

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@merglia4281
I had my left hip replaced and the surgeon broke my femur while pounding in the new hip. They told me I might have a few extra days of pain.

Haw! Several months of pain! The worst was trying to sleep at night. I took a great many Tylenols. Still very bad pain. I did put a pillow under that leg and that helped a bit. I did lots of PT. I am a lot better now. Still not 100%. It's been 3 months.

Most of my pain was in my groin, thigh and buttock.

It was hard to get information on this. One thing I did read was pain IS worse at night. I feel for you and understand your pain. Keep up with your PT. It will eventually pay off. All the best to you.

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