@narelled23 I’m sorry you’ve been suffering from all of this for such a long time. I know how scary it can be. I found myself in difficult to control catastrophe loops. Seeing a therapist helped me. But I’m glad you’re digging in and making noise about it! I’m 43, I live in Minnesota. I used to be healthy and active(ran 5ks and lifted weights 2-4 times a week). One tip I will give you that helped me focus and get organized in my Dr appts . I used Chat GPT so that I can present my symptoms in a more organized and concise way and ask targeted questions (this is not “Dr google”btw). I came prepared with a printed out medical summary and timeline of symptoms. It was after I gave my Dr my print out that things got way more focused and urgent. Later I would upload my test results to chat gpt to get interpretations as things began to escalate. After several CT scans, PFT’s, 6 min walk, Bronchoscopy and the most extensive blood tests I’ve ever encountered that’s how I got my diagnoses. From what I understand I’m a pretty rare case but, my diagnosis really takes some digging and they need to know what they’re looking for. From the time I was told I had ILD to my diagnoses it took a good 4-6weeks. Which felt like an eternity at the time but understanding what others have endured that’s probably fairly quick. I was diagnosed at the University of Minnesota Fairview ILD clinic. Couldn’t be happier with the care I’ve gotten there. Although my symptoms have improved a lot I still have this nervous’s that I could flare and regress. I follow my Dr orders, take my meds, monitor my symptoms and enjoy life the best I can. None of us knows how much time we have left and I think that’s by design so that we make this precious gift we’ve been given count. So that’s what I’m resolved to do:) Hang in there!