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Interstitial Lung Disease and Autoimmune Diseases

Lung Health | Last Active: Mar 23 10:08am | Replies (68)

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I have mild ILD with Lupus and RA. I was diagnosed at National Jewish Hospital (NJH) in Denver, an excellent resource. Mayo Clinic is also an excellent resource for this. The response here from Sue is excellent. The tests for still needing oxygen is pulse oximetry (finger sensor), 6 minute walk test ( tests oxygen saturation levels during exercise) and I would recommend getting tested for sleep apnea ( causes low oxygen levels associated with breathing cessation during sleep). Sleep apnea is common in RA and can aggravate ILD and cause many other problems. It is treatable, usually with CPAP, and requires a sleep study for diagnosis or a nighttime pulse oximetry test (easy screening test for sleep apnea.)I hope this helps you and your wife.

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Replies to "I have mild ILD with Lupus and RA. I was diagnosed at National Jewish Hospital (NJH)..."

@slkanowitz
Thank you for that helpful information. Not sure if you were responding to me.

I had a positive sleep apnoea test and have brought it under control with a dental splint thankfully, rather than deal with sterilising a CPap machine.

Don't want to have oxygen and hoping I can avoid it.

Am glad your ILD is mild.