What helps with dry mouth with Sjogren's?

Posted by bonnies1999 @bonnies1999, Jan 9 1:32pm

My 54 yr old son was just diagnosed with Sojourns disease
Extremely fatigued, very dry mouth, joints ache
Nothing help. Any suggestions?

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sharrondriver | @sharrondriver | Feb 22 2:01pm

In reply to @migraineelaine "@bettersleep68 Just as a heads up, xylimelts singed my tongue and it took a week to..." + (show)

@migraineelaine not sure what you mean , signed my tongue

carlarosie | @carlarosie | Feb 22 8:26pm

In reply to @kellen "Pilocarpine seems to be working most of the day for me. I just started it 2..." + (show)

@kellen I have been using Zylamelts for the past couple of years and they seem to help a lot at night. I’m sure you could use them during the day as well if needed.

migraineelaine | @migraineelaine | Feb 22 9:28pm

In reply to @sharrondriver "@migraineelaine not sure what you mean , signed my tongue" + (show)

@sharrondriver
burned, scorched

tulips2026 | @tulips2026 | Feb 23 4:03am

In reply to @bosslady38 "@tulips2026 it's very hard to talk also. I understand the swallowing issue as well. Good point..." + (show)

@bosslady38
Good morning...I knew I had Sjogrens but up until this year it was very manageable and then things got crazy. I woke up in August and I could barely form words and need to see a speech pathologist which are in short supply so who knows. I moved from Toronto to Nova Scotia and regret it. But day by day! Enjoy your day!

jsbart1 | @jsbart1 | Feb 23 6:15am

In reply to @harryboy7 "I have Sjogrens and autoimmune issues. My mouth is getting more dry than ever. Night time..." + (show)

I use “Allday” dry mouth gel, mostly use at night, get at Amazon. Also CycloSporine eye drops. I do cough drops while sleeping too.

mermaid7272 | @mermaid7272 | Feb 23 8:13am

In reply to @migraineelaine "I go to sleep with a sugarless Ricola cough drop in my mouth. Sometimes I awake..." + (show)

@migraineelaine ---It's scary to sleep with any sort of a drop in your mouth!
I've warned others about my aunt who choked on a drop while sleeping.
Please be careful.

harryboy7 | @harryboy7 | Feb 23 11:05am

In reply to @mermaid7272 "@migraineelaine ---It's scary to sleep with any sort of a drop in your mouth! I've warned..." + (show)

@mermaid7272 Yikes. I worry about that too.

migraineelaine | @migraineelaine | Feb 23 2:28pm

In reply to @mermaid7272 "@migraineelaine ---It's scary to sleep with any sort of a drop in your mouth! I've warned..." + (show)

@mermaid7272

Thanks. I'm willing to something else.

carlarosie | @carlarosie | Feb 24 7:02am

In reply to @harryboy7 "I have Sjogrens and autoimmune issues. My mouth is getting more dry than ever. Night time..." + (show)

I’ve been using XYLIMEKTS for a couple of years and makes all the difference in the world during the night. My tongue no longer is glued to my pallet when I wake up.

mermaid7272 | @mermaid7272 | Feb 24 8:35am

In reply to @carlarosie "I’ve been using XYLIMEKTS for a couple of years and makes all the difference in the..." + (show)

@carlarosie I'll try to find XYLIMEKTS, I haven't seen them in our drug store, but maybe Amazon carries them. Thanks!

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