Have not been diagnosed, But truly believe I have grand mal seizures.

@lar555agmseizures
What symptoms lead you to believe you're having seizures? Are they happening at night or during the day?
Drinking a couple or more drinks doesn't usually cause seizures in most people. Usually when a person drinks more heavily and stops abruptly the risk of having a seizure increases and a person may have a seizure within a couple days. In some people even an occasional drink or two may trigger a seizure but that's not usually very common.
Take care,
Jake

Good Afternoon @lar555agmseizures, and welcome to our group at Mayo Clinic Connect!
I'm sorry to hear you've been experiencing what sounds like grand mal seizures (tonic-clonic). It's such a positive step that you already have an appointment lined up!
From my own experience with grand mal seizures, I have no memory of what happens during them — I only notice the confusion and body pain afterward. Having my husband present to report what he witnessed to my doctor helped a lot in getting the right diagnosis.
I'd like to share this resource from the Epilepsy Foundation, which may be helpful:
Tonic-Clonic Seizures
Epilepsy Foundation
https://www.epilepsy.com/what-is-epilepsy/seizure-types/tonic-clonic-seizures
I'm curious to know, had you experienced any other kind of seizure before these grand mals? Was anyone nearby who witnessed what happened during these grand mal seizures?
Wishing you a great appointment. We'll be here whenever you feel ready to share how your appointment went!!
Chris

@lar555agmseizures
Like @santosha, I too have no memory of having a Tonic Clonic seizure. I also have the muscle aches and the confusion (post ictal phase) where your brain begins the recovery process. I always have to be told what happened. However, some people claim to remember the seizure or parts of it. Tonic Clonic seizures are generalized meaning loss of consciousness so the majority of people have no memory of their seizure. Are you perhaps experiencing an aura, having symptoms like seeing, hearing or tasting things. Do you ever bite your tongue and/or cheeks? Do you find yourself on the floor confused or do you sleep afterwards?
Did your doctor order blood work, MRI and EEG?
Take care,
Jake

@jakedduck1 No auras, no memory, don't remember anything. Very tired & sleepy after. so far only 2 seizures. Luckily haven't bitten tongue or inside mouth. One minute I'm standing & are totally fine then I'm falling like a tree. This time landing on my face & head. Dr 's want to blame it on alcohol or alcohol withdrawal. Scans & blood work I assume doesn't show anything suspicious 🙄

Oh, also very sore all over for a long time after, from the convulsions

Thank you for the "hug" Nice to know there are people out there who understand & "get" it.🙂

@lar555agmseizures I hope you were able to get an appointment with a doctor and very soon. Also, because you are not having any warning of a seizure, I suggest that for now, you do not drive. During my life, I've had three Tonic Clonic seizures. One while driving and I had a passenger in the car who was able to pull the car over to the side of the road. I was lucky. I've been seizure free for many decades with medication. Not remembering anything, tired and sleepy all common. Take care, best to you. Ed

@lar555agmseizures
That's very good advice from @njed about not driving for a while — I'd definitely follow that until you've had a chance to speak with your doctor and get a proper diagnosis. In the meantime, it's also worth avoiding other activities that could be risky if a seizure were to occur, such as climbing ladders or chairs, swimming, and cycling — just until you have a clearer picture.
Chris

@njed Definitely don't drive! I had one while driving too. Unfortunately my passenger was my 6 month old daughter. We crossed 6 lanes of traffic, a big field with giant oak trees and crashed into a old brick house. By the grace of god we were both unscathed. I had been off my meds during my pregnancy and thought I was ok since I hadn't had any seizures in over a year w/o meds. I will never be w/o them again!

@lar555agmseizures Next time it happens go to the ER. It can take you months to get in to see a neurologist but if you have a seizure and go to the ER you'll be seen and they'll do all the necessary tests.