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Interstitial Lung Disease and Autoimmune Diseases

Lung Health | Last Active: Mar 23 10:08am | Replies (68)

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@narelled23
Hi and thank you for your reply. I have only an occasional dry cough and sometimes need to clear my throat. Your nebulizing info is helpful should I need it down the road.

Hopefully you’ll get some answers at your upcoming appointment! One thought as I had to grapple with the reality of using supplemental oxygen for any exertion. So I went from first signs of shortness of breath in Sept to needing to use O2 when diagnosed in Oct. I really did not want to have to do that! But I get quickly down to 88 or lower on pulse ox if I do even slow walks. So accepting that and using it makes a more active life possible. I am fortunate I was able to get one of the small portable devices in addition to the concentrator I have. The irony of lung disease after never smoking and living a healthy lifestyle can drive me nuts so I try not to go there. I’ll be curious what treatment you end up with as you get further evaluated.
Are you in Perth? I think I saw another post from someone from there in the autoimmune strings I follow. If so, I had the wonderful opportunity to spend a few days working there during a business trip I took to AUS, probably around 1990. I fell in love with the stunning beaches and loved watching the school kids having surfing lessons on my morning walks.
Take care!

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Replies to "@narelled23 Hi and thank you for your reply. I have only an occasional dry cough and..."

@loriach
Thank you for your reply. I am glad you seem to have stabilised on O2. My oximeter reading at night has occasionally been low as 88...but generally it is ok.

May I ask if when feeling SOB do/did you feel a band around under your breast area. I am not sure if it is the anxiety causing that or lung damage!!

Yes, Perth is a magic place to live certainly...I came here for a 1 year working holiday in 1973 and despite not having any family here it seems I can't move back over East...the quality of life is so much better here.

I wish you the best for your lung health.
Warmly,
Narelle