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Have you had a wedge resection?
MAC & Bronchiectasis | Last Active: Mar 27 5:45am | Replies (24)Comment receiving replies
@softballqueen - Wow, 4 times in how many years? Does the infection clear each time with treatment? Do you have cavities or other anomalies in your lung that the doctor thinks is harboring the infection? Do you do daily airway clearance, and use 7% saline?
Sorry for so many questions, but this is a pretty big step unless something unusual is happening.
Are you getting your care from one of the Bronchiectasis centers of excellence, or have you been seen at one?
I believe @visions63 is also scheduled for this surgery in the near future. Maybe the two of you can compare notes.
Replies to "@softballqueen - Wow, 4 times in how many years? Does the infection clear each time with..."
@sueinmn Yes the infection does clear each time as confirmed with bronchoscopy. I do not have cavities just bronchiectasis in my LL lobe. I do daily airway clearance with 7% saline and a vest as well as aerolized Arikayce. I spent 2 weeks at National Jewish in Denver after my 2nd recurrence in 2019 and am now managed through Stanford. I will reach out to @vision63. Thank you.
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@sueinmn It was 4 times in 10 years. It goes away for about a year then comes back. The first recurrence I spent 10 days at National Jewish in Denver and they worked with my local doc. I have localized bronchiectasis in LL lobe which sets up a breeding ground for MAC. I do daily airway clearance using 7% saline and a Hillrom vibrating vest. I don't have cavities just some stable nodules. This time my Stanford doc added inhaled arikayce to my normal 3 standard medications. I have just passed a year with negative monthly cultures so will be stopping soon. At 72, I'm just concerned about the risks they explained could happen, Afib being a big one because I had an ablation in 2013 that resolved Afib that I had for 5 years. I'll try & connect with @vision63. Thank you.