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Interstitial Lung Disease and Autoimmune Diseases

Lung Health | Last Active: Mar 23 10:08am | Replies (68)

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Profile picture for rbear @rbear

@narelled23 - yes, I was diagnosed with Antisynthatase-PL7, was discovered last July after encountering SOB. Treatment started with a large dose of Prednisone 60mg daily (I’ve tapered down to 15 mg) and then 2000mg of Mycophenolate daily. It’s been a long and at times scary journey. But, I’m happy to say my Pulmonary function tests and O2 Levels have improved a lot. Currently have objective data showing disease stability and improvement. Although there’s currently no cure I’m optimistic for the future!

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Replies to "@narelled23 - yes, I was diagnosed with Antisynthatase-PL7, was discovered last July after encountering SOB. Treatment..."

@rbear
Thank you so much for that information. I am so glad you have stabilised/improved.

Apparently there are 200 different strains so I am hoping to find out more on 11 March at next specialist appointment.

Wishing you continued good health...and I am hopeful regarding the cell therapy research which is aimed at turning on lungs to repair.
🙏❤️

@rbear May I ask if yours is an auto immune ILD?