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Moderator

Living with Parkinson's Disease - Meet others & come say hi

Posted by Colleen Young, Connect Director @colleenyoung, Dec 8, 2016

Welcome to the Parkinson's Disease group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with Parkinson's or caring for someone with Parkinson's. Let's learn from each other and share stories about living well with Parkinson's, coping with the bumps and offering tips.

Chances are you'll to be greeted by fellow member and volunteer patient Mentor, Teresa (@hopeful33250), when you post to this group.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

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sillyblone | @sillyblone | Feb 17 3:24pm
In reply to @sally2026 "Hello. My husband now lives at a care facility for 2 years due to balance issues..." + (show)
Profile picture for sally2026 @sally2026

Hello. My husband now lives at a care facility for 2 years due to balance issues from PD. He is now in later stages. I just discovered this group and look forward to discussions.

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@sally2026
Welcome to mayoconnect.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 17 8:01pm
In reply to @sally2026 "Hello. My husband now lives at a care facility for 2 years due to balance issues..." + (show)
Profile picture for sally2026 @sally2026

Hello. My husband now lives at a care facility for 2 years due to balance issues from PD. He is now in later stages. I just discovered this group and look forward to discussions.

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Hi @sally2026

How is your husband doing in the care facility? Is he able to get more physical therapy there?

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louismines | @louismines | Feb 18 8:45pm
In reply to @sally2026 "Hello. My husband now lives at a care facility for 2 years due to balance issues..." + (show)
Profile picture for sally2026 @sally2026

Hello. My husband now lives at a care facility for 2 years due to balance issues from PD. He is now in later stages. I just discovered this group and look forward to discussions.

Jump to this post

@sally2026 hi I am sorry about you having to put your husband in a care facility how bad does the balance problem get? I am only a few months diagnosed with PD and know little of what to expect and when, however my doctors are working well with me

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 19 7:41am

The Davis Phinney Foundation offers monthly webinars on topics of interest to PD patients. On March 5, there will be another webinar on Nutrition and PD. Here is a link with information about this upcoming webinar, as well as previous webinars that you can view.
https://davisphinneyfoundation.org/events/live-well-today-webinar-series/

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1 reply
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Chris | @chrissymc | Feb 20 11:08am

Thank you for the link. It looks very interesting.

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Feb 20 7:56pm
In reply to @redkolar "@hopeful33250 NO the neurosurgeon didn’t think it is as accurate as the skin test but we..." + (show)
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@hopeful33250 NO the neurosurgeon didn’t think it is as accurate as the skin test but we may follow up with it.

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@redkolar

I was just wondering how your wife is doing. Is she still working with a physical therapist?

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redkolar | @redkolar | Feb 22 11:19am

We are doing some exercises the PT recommended at home ,getting the test done for her lumbar puncture getting her blood pressure down as well.

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bnewt12 | @bnewt12 | Feb 23 12:04pm

Hello 65 year old male and recently diagnosed with pd- always healthy and happy and full of energy and now I’m feeling depressed. Definitely feeling symptoms- rigidity, sleep disorders, constipation are the worst for now. Trying to stay active and not get down. Also worried because I have a lot of dementia in my family. Any advice or thoughts?

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