Living with lung cancer - Introduce yourself & come say hi

Welcome to the Lung Cancer group on Mayo Clinic Connect.
This is a welcoming, safe place where you can meet people living with lung cancer or caring for someone with lung cancer. Let's learn from each other and share stories about living well with cancer, coping with the challenges and offering tips.

I'm Colleen, and I'm the moderator of this group, and Community Director of Connect. Chances are you'll to be greeted by volunteer patient Mentors and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let's chat. Why not start by introducing yourself?

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for Lisa, Volunteer Mentor @lls8000

@blinken, This is hard news to handle, but it's good that you saw a change in your husband and were able to get him into a doctor. It sounds like his medical team is jumping right into action. The appointment with the oncologist will help you to understand what may be next. A biopsy is helpful to identify the type of cancer, which can be matched to specific treatments. The MRI and PET scans will show where the cancer has spread.
Lung cancer treatments have improved in recent years. All treatments come with challenges, some more than others. Many of us with metastatic lung cancer are living longer 'normal' lives. There are many types of lung cancer, and even more treatments or combinations of treatments.
Try to take one day at a time and try not to get ahead things. Focus on what you know, not what might be. Do you have others that may be able to help with the longer drives? You may want to mention the help that you may need with the oncologist's office too. They may have support resources that they can offer.

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@lls8000 Hello Lisa, has been about 2 months since I wrote about my husband's newly diagnosed lung cancer. There was confusion as to the type of cancer it was, due to the liver biopsy which didn't show what was expected if lung cancer was the primary. After waiting weeks for Tempus results, he developed kidney failure and sepsis and passed away January 31.
The testing has indicated that it was cholangiocarcinoma which is a rare and very aggressive cancer of the bile ducts. It is often found to have metastasized before being detected. That is what happened to my husband. The symptoms were there, but were mild and could have been caused by many other conditions. Apparently this is typical of this type of cancer. He became very weak and was on palliative care for the week that he was in the hospital. It was shocking how fast and how brutal this was.

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Profile picture for blinken @blinken

@lls8000 Hello Lisa, has been about 2 months since I wrote about my husband's newly diagnosed lung cancer. There was confusion as to the type of cancer it was, due to the liver biopsy which didn't show what was expected if lung cancer was the primary. After waiting weeks for Tempus results, he developed kidney failure and sepsis and passed away January 31.
The testing has indicated that it was cholangiocarcinoma which is a rare and very aggressive cancer of the bile ducts. It is often found to have metastasized before being detected. That is what happened to my husband. The symptoms were there, but were mild and could have been caused by many other conditions. Apparently this is typical of this type of cancer. He became very weak and was on palliative care for the week that he was in the hospital. It was shocking how fast and how brutal this was.

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@blinken I’m so very sorry for your loss! ❤️

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Profile picture for blinken @blinken

@lls8000 Hello Lisa, has been about 2 months since I wrote about my husband's newly diagnosed lung cancer. There was confusion as to the type of cancer it was, due to the liver biopsy which didn't show what was expected if lung cancer was the primary. After waiting weeks for Tempus results, he developed kidney failure and sepsis and passed away January 31.
The testing has indicated that it was cholangiocarcinoma which is a rare and very aggressive cancer of the bile ducts. It is often found to have metastasized before being detected. That is what happened to my husband. The symptoms were there, but were mild and could have been caused by many other conditions. Apparently this is typical of this type of cancer. He became very weak and was on palliative care for the week that he was in the hospital. It was shocking how fast and how brutal this was.

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@blinken I am sorry about the unexpected passing of your husband. Remember, it takes time to grieve and heal. Please stay in touch here if it helps. We can offer support. I was diagnosed with stage 4 lung cancer right before Christmas 2025. I had a negative biopsy in September 2025 and was feeling fine. I am on Tagrisso and had 3 rounds of chemo. I'm holding on!

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Profile picture for medtech4 @medtech4

@blinken I am sorry about the unexpected passing of your husband. Remember, it takes time to grieve and heal. Please stay in touch here if it helps. We can offer support. I was diagnosed with stage 4 lung cancer right before Christmas 2025. I had a negative biopsy in September 2025 and was feeling fine. I am on Tagrisso and had 3 rounds of chemo. I'm holding on!

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@medtech4
I wish the best for you. Thank you for your thoughts.

@blinken

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Profile picture for blinken @blinken

@lls8000 Hello Lisa, has been about 2 months since I wrote about my husband's newly diagnosed lung cancer. There was confusion as to the type of cancer it was, due to the liver biopsy which didn't show what was expected if lung cancer was the primary. After waiting weeks for Tempus results, he developed kidney failure and sepsis and passed away January 31.
The testing has indicated that it was cholangiocarcinoma which is a rare and very aggressive cancer of the bile ducts. It is often found to have metastasized before being detected. That is what happened to my husband. The symptoms were there, but were mild and could have been caused by many other conditions. Apparently this is typical of this type of cancer. He became very weak and was on palliative care for the week that he was in the hospital. It was shocking how fast and how brutal this was.

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@blinken, thank you for coming back and sharing this information. I'm sure he felt your love and support. Cancer takes too many of us, and much too soon. I hope you are able to find a sense of peace through your pre-cancer memories of him. Hugs.

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Profile picture for dianelivingston47 @dianelivingston47

Hello!
My name is Diane.
Just got a lung cancer diagnosis.
Still going through testing. Had bronchoscpy and will have PET and brain scan this week. Then on Friday willsee Dr for plan of attack.
It's all so overwhelming at this point.

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@dianelivingston47
It is stage 4 nsclc it has spread to numerous parts of my body, mostly bones but also to brain and other lung. Am on Tagrisso and will also have Zometa as soon as my dental work is done.
Have taken Tagrisso for a week and no side effects yet.

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I introduced myself a couple of weeks ago. Diagnosed with Stage-1A NSCLC in January. Had all the tests and now scheduled for surgery either 3/12 or 3/19 TBD. Met with the surgeon yesterday who impressed my wife and I which is good. Travelling out of state for the surgery is not comfortable but considering this surgeon does this same procedure every day of the week is comforting. Not sure what to expect after robotic wedge resection. Dr said I would be sore, but back to close to normal after 3 weeks. Anyone else with experience in recovery that could help set expectations would be appreciated. They said two days in the hospital then home. 76 year old male.

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Profile picture for bobca @bobca

I introduced myself a couple of weeks ago. Diagnosed with Stage-1A NSCLC in January. Had all the tests and now scheduled for surgery either 3/12 or 3/19 TBD. Met with the surgeon yesterday who impressed my wife and I which is good. Travelling out of state for the surgery is not comfortable but considering this surgeon does this same procedure every day of the week is comforting. Not sure what to expect after robotic wedge resection. Dr said I would be sore, but back to close to normal after 3 weeks. Anyone else with experience in recovery that could help set expectations would be appreciated. They said two days in the hospital then home. 76 year old male.

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@bobca I assume this is a VAT (video assisted thoracic surgery). I had my first wedge resection to right upper lobe (at age 80) and I was driving my car a week later. They want you to cough after so you will have pain medication for that. I also spent two nights in the hospital. Best wishes.

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I’m in Sacramento. I have sought any second opinions yet but seems like since your docs can’t agree it might be beneficial for you. Don’t know much about UCD Cancer care. Maybe do a search on them and Stanford and reach out to their cancer centers to ask how to get 2nd opinion. From what I understand, getting 2nd opinions is pretty common.

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