Spinal cord stimulator support

Posted by robyng @robyng, Mar 27, 2024

I recently had a spinal cord stimulator implanted and would love to hear from others who have one and their experiences.

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Profile picture for daxel79 @daxel79

Yes!! Same thing here! I can’t have mine turned up past 5 or it hurts my legs and feet so bad! I turned it off and have had it off for 2 days now. I wrap my feet with 6 big patches of lidocaine with the self adhesive ace wrap.

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@daxel79 were you diagnosed with neuropathy in your feet? What make of SCS do you have implanted? Lidocaine 5% (prescrptiom strength) lidocaine patches help with the scar tissue in my toes for prior surgeries.

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Profile picture for martyk @martyk

@rivermaya34 So you are referring to a trial?

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@martyk No, I apologize as I wasn't clear. Good that you pointed it out, though. The permanent stim, I meant.

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Profile picture for martyk @martyk

@daxel79 were you diagnosed with neuropathy in your feet? What make of SCS do you have implanted? Lidocaine 5% (prescrptiom strength) lidocaine patches help with the scar tissue in my toes for prior surgeries.

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@martyk I was diagnosed with CRPS/RSD , it started in my left foot, and has now morphed to my right foot, left hand and left side of my face. I have the Nevro HFX 10 SCS

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Profile picture for martyk @martyk

I'm happy to hear the Medtronic worked. What part of your body did the SCS target? Where was your pain? Did a neurolgist suirgeaon perform the surgery? Thank you and good luck

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@martyk
The SCS is in my spine targeting my left leg from the knee down. The pain was mostly in my left knee. Yes a neurological surgeon performed the surgery. I still have some pain but I try to maintain daily activity (while caring for my 95 year old husband). I actually feel better if I’m active; sitting and bending my knee is the worst for me.

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Profile picture for gmaj85 @gmaj85

@martyk
The SCS is in my spine targeting my left leg from the knee down. The pain was mostly in my left knee. Yes a neurological surgeon performed the surgery. I still have some pain but I try to maintain daily activity (while caring for my 95 year old husband). I actually feel better if I’m active; sitting and bending my knee is the worst for me.

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@gmaj85 Thank you.

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I had a stenosis stimulator for severe lower back pain but I never had any relief from the pain. It was in for about 3 years and then removed so I could have an MRI.

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Profile picture for Pattee Fletcher @fletchette

I had a stenosis stimulator for severe lower back pain but I never had any relief from the pain. It was in for about 3 years and then removed so I could have an MRI.

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@fletchette Had one also. Did not work. I finally had the dead battery removed. No more implants for me.

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I also had the same SCS as you. I found a tiny bit of relief during the first few months. Then, nothing at all. My spinal surgeon said they are a joke.

Pain management implanted it. I had it in me for 8 yrs, and when I had my 3rd (out of 4), fusion (3rd was part one of the 4th surgery, done in 2 stages), the surgeon removed it for me. I felt no different having it removed, then when I had it in. I've had it recalibrated so many times over the 8 years, and still to no avail.

I just had (on Jan 2026), a high risk full reconstruction from T10 to pelvis (61 stitches). So, needless to say, I'm suffering big time, but glad that stupid SCS is out of me.

I hope you get some relief as I did not at all.

P.S. sorry for this late reply, but I just came across this post.

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