Anyone have experience with Multiple System Atrophy (MSA)?

I have been dxd for MSA and was taking Flomax twice a day. Stopped taking it and had bad dizzy spell and unable to walk. Should I continue with flomax or stop
Thanks

@philipcgardner We had to take Joe off Flomax as it was making him dizzy. When did you stop taking it?

I am very sorry to report that I lost my beloved Joe on 10/23/2025. He died at home. He was only 53. This group has been wonderful. I wish the best for you all. His obituary is on my FB page (yes I used my real name). I miss him so much.

@shelleystolfi
I'm so sorry to hear of Joe's death. I know from your previous posts, that you both worked really hard to find help.

If you are so inclined, I would like to invite you to post about your grief on Connect's Loss and Grief support group. Here is a link to those discussions: https://connect.mayoclinic.org/group/loss-grief/

Would you be willing to share a few ideas for those who are facing life with MSA?

@philipcgardner

Have you talked about this with your doctor? If not, please give the office a call (or send a message through the patient portal), to see if they can offer some advice.

@shelleystolfi
Sorry to learn about your husband.
I stopped taking Flomax three. Days ago. Still get dizzy but think there may be hope

@philipcgardner After Joe stopped taking the Flomax it took a couple of days to stop the dizziness. No one could believe his prostate went back to normal. Hang in there.

After the last 10 years of searching, they've finally given me a diagnosis of Multiple System Atrophy. Anyone out there dealing with Multiple System Atrophy?

@scottmoon - welcome to Mayo Clinic Connect. I wanted to let you know I moved your post here so you could talk with others in this existing discussion about multiple system atrophy (MSA).

Here is some information from Mayo Clinic on MSA that may be useful:

- Multiple system atrophy https://www.mayoclinic.org/diseases-conditions/multiple-system-atrophy/symptoms-causes/syc-20356153

Hoping others in this discussion such as @philipcgardner @cctee @saganjames @shelleystolfi @ripley77 will return and share their relationship to MSA with you and any pertinent experiences. I'd also like to introduce you to @hopeful33250.

scottmoon - what symptoms have been bothering you the most lately?

Hi Lisa, thanks for moving my post.
I have most of the symptoms of cerebellar type of MSA.
The worst right now are dizziness, balance issues, bladder issues (I've had a catheter for quite awhile), blood pressure swings, speech issues and tiredness. I have to use a walker to get around. Trying to stay out of a wheelchair as long as I can. I have a wonderful wife that's been taking care of me. Couldn't do it without her.
Scottmoon