Does anyone have a solution to help manage Reclast side effects?

kcurtiss, call your doctor tomorrow and let them know. You might ask for a 5 day prednisolone tapering pack. Yes, steroid, but I've read that the inflammatory response may be harder on your bones than the five day prednisolone. Your doctor or you yourself may want to wait for a week to see if the cytokine reaction ebbs on its own. I'm pretty sure I would not want to wait. Sometimes cytokine responses are self generating.
Some say exercise helps mitigate the pain but that's impossible it's too painful to move. Some few end up in hospital with IV steroid. Steriod is really the only thing to stop a recycling cytokine reaction. You might wake up Monday feeling better. Praying.

@gently I have heard, “ Time heals all wounds “. It’s been 19 months for me and things are either improving or I am learning to accept where things are. I’m told the infusion last about 18 months! I a doing better in a lot of ways but each day is a new start. I did and recommend reporting your side effects to the FDA! I feel this medication has to many long term side effect for a lot of people and should only be used as a last resort! A lot is also, mind over matter; try to stay positive and things will improve!

@gently I have heard, “ Time heals all wounds “. It’s been 19 months for me and things are either improving or I am learning to accept where things are. I’m told the infusion last about 18 months! I a doing better in a lot of ways but each day is a new start. I did and recommend reporting your side effects to the FDA! I feel this medication has to many long term side effect for a lot of people and should only be used as a last resort! A lot is also, mind over matter; try to stay positive and things will improve!

@dannyandebbie
another eccentric, misplaced bromide bandied about pain offices is "the new normal."
Both phrases originated from political settings where they may have made some sense.
Danny, the chorus you and others are creating here make it possible for me and others to avoid the need to contact the FDA about these terrible long term side effects.
Because the drug attaches to the bone long term and releases its harms for many years (10 they say). You may have recurring, though not as intense reaction every time an osteoclasts tries to attach to the bone.
Do you or your doctors have any clues (autoimmune or other) as to why your response was so very terrible.
Thank you for posting and for continuing to post, even though the site provides you with no answers.

@jenkev74 Sorry to hear about your experience with Reclast. They want me to to it. Have you gotten any better now? And, what is PMR, if I may?

Not sure if this is the place to post but anyone develop extreme bruising while on reclast? I hit my hand on something, not terribly bad, and the entire back of my hand went technicolor. Two weeks later still slightly bruised…same thing on top of foot (caught dishwasher door when down!) 7 months in on infusion. Also on and off sometimes severe bone pain but can deal with it, and that’s a well known side effect.

@jozer funny you mention the bruising. Yes, I have noticed it, just thought it is more from my aging being 69! Who knows! Right!

@dannyandebbie interesting …wonder anyone else? AI (artificial for a reason I believe) says that it is a side effect but who knows? Doc never went over any side effects on reclast other than watch out for pain knee up as it could indicate atypical femur fracture, and I might have some flu like symptoms for a day or so. Nothing about the possible side effects maybe down the road…

@jozer For one reason your endocrinologist could not elaborate on the specific side effects is because they study the bone structure and how to prevent further bone loss; where as a pharmacist studies medication, better able to provide potential side effects; my thought. And, if your endocrinologist knew and shared all the potential side effects, would you continue with the treatment? I would not have! It’s a lot like politics…..only tell one what they believe one needs to hear to sell the idea, in this case, the treatment!