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Profile picture for dannyandebbie @dannyandebbie

@gently I have heard, “ Time heals all wounds “. It’s been 19 months for me and things are either improving or I am learning to accept where things are. I’m told the infusion last about 18 months! I a doing better in a lot of ways but each day is a new start. I did and recommend reporting your side effects to the FDA! I feel this medication has to many long term side effect for a lot of people and should only be used as a last resort! A lot is also, mind over matter; try to stay positive and things will improve!

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Replies to "@gently I have heard, “ Time heals all wounds “. It’s been 19 months for me..."

@dannyandebbie
another eccentric, misplaced bromide bandied about pain offices is "the new normal."
Both phrases originated from political settings where they may have made some sense.
Danny, the chorus you and others are creating here make it possible for me and others to avoid the need to contact the FDA about these terrible long term side effects.
Because the drug attaches to the bone long term and releases its harms for many years (10 they say). You may have recurring, though not as intense reaction every time an osteoclasts tries to attach to the bone.
Do you or your doctors have any clues (autoimmune or other) as to why your response was so very terrible.
Thank you for posting and for continuing to post, even though the site provides you with no answers.

@dannyandebbie thank you