Has anyone experienced 'Airway Remodelling'?

Posted by narelled23 @narelled23, 3 days ago

Does anyone have any information about 'Airways Remodelling '...apparently when inflammation has been proceeding unchecked over some time and which results in airways thickening and narrowing and reduced lung capacity?

Have just had my specialist appt and he mentioned the above (which I had discovered existed for myself through research last year). I have increasing volumes of mucus production (3 cups/day) and recently am experiencing a lot of SOB. According to my spirometry I have lost 1L of lung function in recent years. We are trying to discover what is driving the loss. But my next appointment is several months away where he will presumably have the information he needs to know why this is suddenly getting worse and if there is anything I can do to intervene. I think I am down to 1.5L of oxygen capacity.

I have no idea how bad that is or whether allergies etc might be causing a reversible oxygen loss.

Any idea very much welcomed. @sue

I don't know whether he was diagnosis that Remodelling for me or whether it was a possiblity. We have done bloods, HRCT of both sinuses and lungs, sputum was negative.

When SOB I am finding an antihistamine has been helping.

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

This has just come up on my phone! It has been listening to me again.
Has anyone heard of this?
https://scitechdaily.com/a-breakthrough-discovery-could-help-lungs-repair-themselves/

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Profile picture for scoop @scoop

@narelled23 Gosh, I hope you get to the bottom of it soon. A consult with an immunologist sounds in order.

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@scoop
Have managed to bring forward my Resp. Spec. appt to 11 March and got in to Immunologist early May, but on a cancellation promise there for something beforehand. So think that is all I can do.

Scoop, have you heard about the research Mayo is involved in to switch on the alveoli cells to repair and not just defend? It came up on my phone today.

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Profile picture for narelled23 @narelled23

@scoop
Have managed to bring forward my Resp. Spec. appt to 11 March and got in to Immunologist early May, but on a cancellation promise there for something beforehand. So think that is all I can do.

Scoop, have you heard about the research Mayo is involved in to switch on the alveoli cells to repair and not just defend? It came up on my phone today.

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@narelled23 I’ve read about related studies in China. Glad to hear it’s happening in US also.

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Profile picture for narelled23 @narelled23

This has just come up on my phone! It has been listening to me again.
Has anyone heard of this?
https://scitechdaily.com/a-breakthrough-discovery-could-help-lungs-repair-themselves/

Jump to this post

@narelled23, thank you for sharing that link. Music to my ears.
Best wishes of great health to all of us!

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Profile picture for Sue, Volunteer Mentor @sueinmn

@narelled23 Go to the lung conditions group and search. If there is not a discussion, you could start one.

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@sueinmn What is SOB and ILS? I am fighting bronchiectasis and need to understand all that I can. Thanks

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Profile picture for htolan @htolan

@sueinmn What is SOB and ILS? I am fighting bronchiectasis and need to understand all that I can. Thanks

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@htolan SOB = shortness of breath
ILS = interstitial lung disease

Sue gets the first 😖 for not making sure acronyms are spelled out!

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Profile picture for narelled23 @narelled23

This has just come up on my phone! It has been listening to me again.
Has anyone heard of this?
https://scitechdaily.com/a-breakthrough-discovery-could-help-lungs-repair-themselves/

Jump to this post

@narelled23 One of the good pieces of information received that was not necessarily looked for or specifically asked for....Good things do happen with technology.
Thanks for passing the link on.
Let's hope it all comes together quickly for all that can be helped with the information and findings.
Barbara

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