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Successfully treated for Polymyalgia Rheumatica
Polymyalgia Rheumatica (PMR) | Last Active: Nov 9, 2023 | Replies (101)Comment receiving replies
Well bad news this morning very sore did not get much sleep last night will try again today 10 in the morning & 10in the evening will see what happened tomorrow taking none. Yesterday I had a very good day worked for 9 hrs. for the PD. But come 5PM the pain starts & stays until morning. Are you experiencing the same effects? Also I started fighting PMR in March should I give more time for results?
Replies to "Well bad news this morning very sore did not get much sleep last night will try..."
This what I have heard that it is not curable & yes my Dr. did a sedimentation test along with 3 full pages of test just to eliminate arthritis. Thanks for the link.
Well I myself also hope it does not last that long matter of fact I hope it is in remission by fall my wife & I are down hill skiers & I sure would hate to miss this years season. At age 76 you never know if that will be your last or not
As long as the symptoms are under control, PMR should not prevent/limit you from doing anything you want. I'm 62, play golf 4-5 times a week and do not have many issues while on the correct dosage. About 3-4 weeks ago it was a struggle to get out of bed, let alone go play golf. Once I increased my dosage from 10mg to 20mg, I felt very good. In fact, I just got back from a 3 mile walk and feel pretty good.
When I was first diagnosed, I was anxious to get cured and move on. I made the mistake of trying to taper off prednisone too soon. However, I was only following my doctor's advice and tapered according to his schedule, not mine. Your body is your best guide, everyone is different.
I would encourage you to look forward to ski season.
Thanks for the words of encouragement, this morning not moving so good
No you indicated that you see a rheumatologist at Mayo is it the one in AZ or MI or Fl
Minnesota
Well if I don not get better results with this situation I am in it will probably be my next step that is visit the Mayo clinic in Scottsdale 150 miles away but an easy drive.
Last Tuesday 6-13 I dropped my pred. in the AM to 5mg & still taking 5mg with dinner. Well that did not work out so well Friday had to go back to 10mg in the morning. Shoulders were really starting to bother me, still experiencing discomfort in the morning but around 10 AM it is mostly all gone I think I am pushing it to much that is I am just to anxious for it to go away & with all that is told to me about PMR it has to run it's course.
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My understanding it is not curable but manageable. Did your doctor test your sedimentation rates?
Here's a link you may find helpful.
http://www.arthritis.org/about-arthritis/types/polymyalgia-rheumatica/