Europe based members

Posted by dinu @dinu, Jan 26 4:08pm

Hello everyone,

I would like to do a quick poll to find out how many of us are living in Europe and discuss what treatments we have available on this side of the pond.
Since the European medicine organizations have somewhat different medicine approvals than the FDA in the States, it would be interested to get a base line. Also it would be interesting to find out what treatment options we are being offered in Europe. I know myself, in Germany alone, I have interacted with a dozen various doctors for my PCa and receive half as many different opinions.
Additionally, the AnCan foundation is running regular live webinars where the have several doctors joining in. Since some of their webinars are held in the evening time (US Time zones) it may be difficult for some of us in Europe to attend.
I have spoken with the founder of the AnCan about holding some webinars earlier for the European audience and we would like to do a row call to see how many people would be interested in attending such webinars.

So, a simple response with the country in Europe where you are joining from and if you are interested in attending the AnCan webinar would suffice for now.

Thank you very much for your time and as always, be strong and stay positive.

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

denis76 | @denis76 | Feb 15 12:18pm

In reply to @dinu "@denis76 Hi Denis, i am doing ok, the PSA is staying kind of constant, just above..." + (show)

@dinu

Okay. Thanks. My testosterone levels dropped by 1.5 times (knock on wood, 3 times).

PSA 4? Are you having surgery soon?

cochuir | @cochuir | Feb 17 4:23am

I am in Ireland and I am interested in the Webinar
Neil

dinu | @dinu | Feb 17 8:09am

In reply to @cochuir "I am in Ireland and I am interested in the Webinar Neil" + (show)

@cochuir
And we are T-1 countdown until our first meeting for the European audience. Here is the oficial post with the link to the meeting.
It is listed under
https://ancan.org/prostate-cancer/, under the section Upcoming Prostate Cancer Groups.
Fell free to share the link and look forward to see you all there.

Our European AnCan audience who find it tough to attend meetings in the wee small hours of the night have requested a meeting at a more time friendly hour. Unlike our other prostate groups, this meeting is open to all levels – until there is a quorum to establish separate groups for different levels of prostate cancer. The meeting will start with the lowest grade, allowing men to drop out along the way.
This peer-led free and drop-in meeting is open to patients and care partners and will be conducted in English. It is open to all however Euro based participants are given priority.
3nd Wednesday of each month at 2 pm Eastern/ 8 pm CET in The Barniskis Room (222-583-973) https://ancan.org/barniskis

Moderator: Rick Davis

dinu | @dinu | Feb 17 8:14am

Too all who will be attending the virtual chat tomorrow at 8PM CET, please make sure you try out the link i posted in my previous post before.
Just click the link and make it works and you can connect to the chat room even if there are no meetings going on.
I have looged in in the past with and without VPN from Germany and there should be no problems joining. I will monitor Mayo forum as well diuring the chat, in case some of you may have problems connecting.
Keep in mind that, since this virtual chat has been advertised on other channels we may have more people joining in and we may not be able to address all the questions. Keep all your questions for the following recurring monthly meetings.

smoore4 | @smoore4 | Feb 18 7:45am

In reply to @dinu "@cochuir And we are T-1 countdown until our first meeting for the European audience. Here is..." + (show)

@dinu Just reposting the links....

Meeting is today - Wednesday - at 2 PM EST.

3nd Wednesday of each month at 2 pm Eastern/ 8 pm CET in The Barniskis Room (222-583-973)
https://ancan.org/barniskis
https://ancan.org/prostate-cancer

dinu | @dinu | Feb 18 12:59pm

The meeting has started.

dinu | @dinu | Feb 18 1:09pm

please let me know if your are having trouble connecting

dinu | @dinu | Feb 19 7:40am

Hello everyone,
Yesterday we had a very nice first chat. We had folks joining from France, England, Ireland, Germany, Cyprus, Iceland, as well as from US.
The two hours allocated for the chat flew by very fast. We had about 10 people joining, besides the organizers.
The meeting was recorded amd once the recording will be available, I will post the link.
For those not able to join, the next meeting will be on March 17th (wear green since it's going to be St Patrick's Day)