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Still Trying To Find Answers

Posted by alandy233 @alandy233, Feb 15 9:58am

Hi Everyone, it has been a while since I have checked in and I am still trying to take things one day at a time and trying to get answers to this puzzle that is GCA. I have been able to get some answers and a few pieces of the puzzle but there is much I still do not know but I will keep looking.

Sadly, I am getting ready to fire my Ophthalmologist and start a multi-million dollar lawsuit against him for Malpractice. I believe and have believed that he is way out of his depth with my case and yet he won't admit it or ask for help. It seems that I am the only one who is brainstorming and contributing ideas to this situation.

I will also be initiating a multi-million dollar Malpractice lawsuit against the Rheumatologist that I am supposed to see in another three months (A total of 9 months I have been made to wait despite a diagnosis of imminent blindness). I may go blind due to their mistakes , stupidity, and lack of actions but I will live well doing it.

As I said above I am still trying to get answers and I am hoping some of the support group members may want to share their experiences so we all can learn. I have been having good and bad days for my vision and sadly mostly bad days. One thing I am having trouble figuring out is why does my vision always tank just after I eat my breakfast? I get up at 6:00AM clean up, and take my Dog for a walk around 7:30AM. This morning was nice with soft diffused sunlight and low cloud cover; easy on my vision.

We finished up our walk and I got my breakfast cereal, toast, and coffee. Within 15 minutes of my sitting down to eat my breakfast my vision absolutely tanked. My Field of View got really dark and the blur, double vision, haze, and "window shade effect" fully kicked in. I have no clarity or contrast in my vision and my vision was totally flat, no depth of field at all. This happens typically 6 days out of 7 and it is really pissing me off. I am on 60Mg of Prednisone/day which I take just after I finish my breakfast and I am wondering if I need to start taking it before I eat or do I need to split it up half in the morning and half in the afternoon or is there another option I am not aware of? Thoughts are appreciated.

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

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dyas | @dyas | Feb 16 9:14am

I have an issue totally unrelated to Prednisone and eyes. I just want to say this forum provided by Mayo is outstanding. It’s the reason I’ve followed the Mayo Clinic for years.

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squirrellunch | @squirrellunch | Feb 16 10:44pm
In reply to @alandy233 "@squirrellunch Thank you for sharing. This is good information and what I need. Definitely a piece..." + (show)
Profile picture for alandy233 @alandy233

@squirrellunch Thank you for sharing. This is good information and what I need. Definitely a piece of the puzzle and i will help immensely. Thank you again.

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@alandy233 I'm glad I helped. I hope things go better for you. I understand many problems so I am here for help too. I have RA, Osteoarthritis, Osteoporosis, chronic pain, fibromyalgia, edema (Leaky valves) in my legs, DVTs due to V LEIDEN blood clotting, etc. Thank you for sending me your message.

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squirrellunch | @squirrellunch | Feb 16 10:53pm
In reply to @colleenyoung "@squirrellunch, thank you for your information. It looks like you may have used an AI tool..." + (show)
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@squirrellunch, thank you for your information. It looks like you may have used an AI tool to do your research. Did you use a tool like ChatGPT, Copilot or similar to find this information?

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@colleenyoung I do a lot of research using Google Chrome with duck-duck-go search engine. Then you have to go a bunch of pages down the search results because the 1st ones are not the best, they paid for search engines to list them early in the results. Then I look for what I think are real places to help -I.E. NOT WIKIPEDIA. Then I copy to MS Word what I think may help me and then save my info in word or pdf format. I search, copy, paste because the RA has done a # on my hands, and fingers.

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