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← Return to New to Hydrea for ET
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Blood Cancers & Disorders | Last Active: Mar 6 10:50am | Replies (231)
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Hi,@maine
Are you still taking HU or did you stop it after this good result?
Replies to "Hi,@maine Are you still taking HU or did you stop it after this good result?"
Hello, ebertolis! As long as my mis-programmed bone marrow is pumping out excess platelets, I will keep taking HU.
Unfortunately, ET's not like a pulled muscle, where you take an aspirin only when it hurts.
ET's a chronic condition that has no cure.
If you and your doctor decide that HU is beneficial, then please remember: every capsule is protecting you from strokes and clots, reducing the exhaustion and headaches of ET, and shoring up your bone marrow.
Do I LOVE taking pills? Absolutely not!
But am I going to let ET win?
Heck no.
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@ebertolis Yes, still on daily HU in liquid form. I got it compounded for a few years and now on the brand "Xromi". Probably developed for pediatrics but good for those of us who can't swallow pills. A bit tedious as it must be refrigerated but it's working. Blood is tested every three months to be sure all is well.