Newly diagnosed osteoporosis and have cried every day this week

@oopsiedaisy I've been taking it for 2 months now I haven't had any issues except that it makes you urinate more frequently. What issues have you heard about??

@beanieone I will keep you updated I've been taking 25 mg of hydrochlorothiazide for a few months now I'm repeating that 24 hour urinalysis on march 5th to see if it's helping the way she thinks it will!! I'm praying for positive results for the both of us!!! I will post as soon as I get results! Until then stay safe!!!

When I was first diagnosed my Dr recommended Prolia and referred me to a rheumatologist. I had time to better understand my options before my first appointment. Long story short, I did not want to start any of the osteo meds I just wasn't ready to go that route. While I have osteoporosis in my spine my TBS score put my bone quality architecture as normal. I decided to pursue BHRT and am also taking Strontium Citrate. The BHRT has helped with other issues, for one I sleep so much better and the Strontium Citrate has already helped and without any sideeffects. For now this feels like the right path for me.
I understand the hopeless feeling when being diagnosed, this forum and Inspire forums helped me a lot.

@jimmy05,

Thanks, Jimmy, do keep me updated. I’ve only been taking the med since February 11, so it might be awhile before I know how much this therapy helps.

Blessings to you.

Cheers!

@jimmy05 Dizziness and electrolyte imbalances.

@ccps101
What would those contrindications be?

@rudysmom Hello! I echo the sentiments of @gravity3 100%…you really are in the right place. 💝

I am a year older than you, and our scores are remarkably similar. And I, too, cried when I was diagnosed because for years, I did serious weight-bearing exercises, watched my weight/diet, did all the “things,” but I was treated for breast cancer and went through menopause at a very young age, so the die was cast with regard to my bones, as they say.

Truthfully, I’m surprised it took this long to be diagnosed with osteoporosis.

I have yet to start a medication (Tymlos), but the women here who have been on it have been a constant source of kindness, patience, and inspiration to me.

I was diagnosed by my gynecologist too, but left her care when she told me Prolia was the only drug I can take. She never told me to take a break from Fosamax. She never counseled me on good bone health. I wasn’t happy in her care, so I left.

I am on my second rheumatologist now, but if you feel you need to see an endo, DO IT.

Check their ratings online. See what patients are saying about them. If you get a bad feeling, leave and find another: in fact, make a list of endos you would like to see. Ask if you can meet with them without an appointment; some may do that.

There is power in being proactive. Get your calcium from food. Keep doing yoga, add weights when you can.

If you like to walk, stomp! Stomping is great for bones.

I keep saying I’m going to bring skipping back, because I’ve always loved to skip. It’s a form of stomping, it’s cardio, it’s joyful. We should start a skipping group here. 😁

Check out the videos people have suggested on YouTube.

Prioritize YOU. Get good sleep. Eat good foods. Do fun things. Put yourself FIRST. You’ve taken care of everyone else. It’s your turn now.

Wishing you all the very best! ✨

I feel like I am reading my own letter. I am there with you. Its true after Menopause, women's estrogen drop
significantly. Even doing everything right to keep your bones strong is not a guarantee that you or we will not get Osteoporosis. It truly sucks. It feels like our bodies have let us down.
Seeing an Endocrinologist is good. However, I think the doctors only have so much information.
And don't always have the empathy on what we are going through. Medications always seem like their first option.

I know I sound negative. My bones aren't great. Have had several fractures and compression fractures. They wanted me to go on Tymlos. I did a full dose for 6 months. Everyday I was nauseated and felt terrible. Then I went off...felt normal again. It just made me feel even more frustrated. My Endo told me to drop the dose and see what happens. I am starting this now.

Before making a decision, Talk to a Clinical Pharmacist in your Endo office. They can give you so much information about all the drugs that are available. They will look at your medical history and your Dexascan and explain things more thoroughly, and suggest the right drug for your individual situation.
I know its hard. Thanks for sharing your fears and concerns with all of us.

@sfe431 Don't do anything until you research the drugs and other treatments. Drugs do not find the cause they treat the symptom and you can end up taking them your whole life. I just had a Rems scan and my spine went from -2.9 to -2.4 in one year. My hip stayed the same, 2.6. Rems measures the quality of your bone., mine was good. I have a 2% chance of a fracture in my hip and a 1% chance in spine in the next 5 years. No drugs. I lift weights, do HRT, of course Vit D, vibration plate and very active. Seek your doctor's advise.

Osteoporosis is not a death sentence, and you can improve it. I was at -3.4 when I started. Now I'm -1.7. I go to the gym, and I run in 5K races. I feel great. Life threw you a curveball. Good hitters learn how to hit a curveball. You can, too! Have confidence.