@daisy17
I take some of the vitamins you mentioned. I also take Klor-Con 20 meq (Potassium ). I want to start my Magnesium Glycinate, but am getting conflicting information from pharmacists and internet on spacing of supplements with dystonia medications and possible interactions. I find it ironic that doctors don’t seem to be concerned with supplements even though some can inhibit the absorption of others and of the meds, themselves. One pharmacist confused potassium with K2 (M7).
@pmhpesp5
The best way which I have found to be sure of spacing and interactions of my meds and supplements plus any reactions to any conditions or diseases is to list my supplements and medications, diseases and concerns on copilot and ask it to evaluate and tell it to bear in mind my priorites.
Copilot is great for this type of question because it can look at ALL the research and current practices, at your lists, concerns and needs and arrange it all and even give you schedules around your eating patterns.
You can just basically dump all the information on copilot.
Just be sure and check and tweek any information as needed.
Plus, I tell it to always remember this discussion and use the information if I ask about anything else medical wise that might be impacted.
I suggested copilot to a woman, on another site, who was dealing with some complicated hormone issues; she worked with copilot and then took the results to her doctor and as per her self reporting the many years of problems was resolved with recommendations from copilot and tweeking by her doctor. She was amazed.
@SusanEllen66
I know how you feel about falling. I have cervical dystonia (CD) and am constantly reviewing that treatment approach as well as fighting off the demand to take osteo meds. I’m trying to balance CD drugs w/ Citrical, K2 (M7), D, & Magnesium Glycinate. Dystonia causes equilibrium problems. Good gravy! What I’d give to be able to ski again! lol
Thank you to everyone for sharing your experiences.
@pmhpesp5
The best way which I have found to be sure of spacing and interactions of my meds and supplements plus any reactions to any conditions or diseases is to list my supplements and medications, diseases and concerns on copilot and ask it to evaluate and tell it to bear in mind my priorites.
Copilot is great for this type of question because it can look at ALL the research and current practices, at your lists, concerns and needs and arrange it all and even give you schedules around your eating patterns.
You can just basically dump all the information on copilot.
Just be sure and check and tweek any information as needed.
Plus, I tell it to always remember this discussion and use the information if I ask about anything else medical wise that might be impacted.
I suggested copilot to a woman, on another site, who was dealing with some complicated hormone issues; she worked with copilot and then took the results to her doctor and as per her self reporting the many years of problems was resolved with recommendations from copilot and tweeking by her doctor. She was amazed.
@kathleen1314 Thank you for your suggestion. I’ll give it a try. I’ve read so many peer-reviewed research, so it’d be nice to have AI do some of the legwork.
@jrenjr and @njx58
Hey - we are all struggling with these issues. I don’t want to “assume” a tone in your messages, but they sounded a little snarky. Though supplements may not be the answer, we all are trying things that may work for our metabolisms. Every body reacts differently to meds, supplements, nutrients, and etc. Some of us have problems just with absorption. This forum can present reality checks, but let’s try to prioritize sharing helpful experiences. I hear you on the supplements. There are guidelines how to take them (ie With food; with other supplements; at certain times of the day; avoiding possible interactions).
If I misinterpreted your response, then I apologize. Perhaps it was your own frustration with the whole process.
@jrenjr and @njx58
Hey - we are all struggling with these issues. I don’t want to “assume” a tone in your messages, but they sounded a little snarky. Though supplements may not be the answer, we all are trying things that may work for our metabolisms. Every body reacts differently to meds, supplements, nutrients, and etc. Some of us have problems just with absorption. This forum can present reality checks, but let’s try to prioritize sharing helpful experiences. I hear you on the supplements. There are guidelines how to take them (ie With food; with other supplements; at certain times of the day; avoiding possible interactions).
If I misinterpreted your response, then I apologize. Perhaps it was your own frustration with the whole process.
@kathleen1314 Thank you for your suggestion. I’ll give it a try. I’ve read so many peer-reviewed research, so it’d be nice to have AI do some of the legwork.
@pmhpesp5
Yes, and recently copilot read an accompanying information sheet which was in FARSI for me. That information was not published in the NIH publication and it contained the actual amounts of product which was used and studied.
Used well, especially for collating information and with an eye to research the AI can be a great boon. We just need to monitor and legislate it better than we have done social media. SIGH
@kathleen1314 Thank you for your suggestion. I’ll give it a try. I’ve read so many peer-reviewed research, so it’d be nice to have AI do some of the legwork.
@pmhpesp5
Ask to make sure that copilot can keep the information safe or how best to present and work with copilot to ensure your safety and privacy. That would ease your mind also.
@gravity3 My DEXA scores are severe.
First diagnosed in 2017, my hips were -2.2, femoral neck -2.4 and spine -3.2.
My last DEXA in 2024 showed hips -2.7, femoral neck -2.7 and spine -04.0.
So my spine is not good and I am very careful with my movements. Since 2017, I've taken calcium and Vitamin D. I've only been taking the other vitamins and Fortibone for about a year and my next DEXA is due this summer. I am sure the doctor will again express his displeasure that I don't want to take meds. The only drug options for me are Evenity and bisphosphonates because of my parathyroid issues.
I am going to start taking Seen Calcium Chews, which are sourced from food. They are expensive, but recommended by Dr Lisa Moore, a DPT who is on Facebook, at "Brick House Bones".
I was found to have Parathyroid issues a couple years ago which is the reason for my bad osteoporosis. I had unsuccessful parathyroid surgery then but the surgeon, who was an endocrine specialist, couldn't find the bad parathyroid. I had a lot of scar tissue in my neck from a prior thyroid surgery. I went to the Mayo in Rochester last year and had three CT's that found the bad parathyroid, but I can't have any more neck surgeries. My PTH and calcium levels are just above the high level so I'm being watched. The only option I have would be an ablation (injection of something to try and kill the adenoma) and that's a 3-day process.
@daisy17
You are in a difficult situation. From what I read, you have parathyroid disease that affects your calcium but you cannot have surgery?
If so that means that you have to have a dual action of lowering calcium and protecting your bones. Am I understanding this correctly?
I believe that this is the injection etc to which you are referring:
Radiofrequency Ablation (RFA): A needle-like probe uses heat to destroy the overactive parathyroid tissue under local anesthesia.
or sometimes this procedure may be used:
Ethanol Ablation: Medical-grade alcohol is injected directly into the parathyroid tumor to kill the overactive cells.
Some good news though is that if you can take care of the parathyroid then your osteoporosis may completely clear up or at least become much more manageable. The PTH and calcium levels though high aren't horrible it seems so that is good also.
Please continue to let us know how you do. You seem to be in good medical hands and just need time to let this problem reveal its self completely.
@pmhpesp5
Yes, and recently copilot read an accompanying information sheet which was in FARSI for me. That information was not published in the NIH publication and it contained the actual amounts of product which was used and studied.
Used well, especially for collating information and with an eye to research the AI can be a great boon. We just need to monitor and legislate it better than we have done social media. SIGH
@kathleen1314
I agree with you wholeheartedly. Fascinating that it provided information in FARSI. The possibilities for AI are endless, but it must be monitored for security’s sake.
Connect
Connect
Like
Helpful
Hug
@pmhpesp5
The best way which I have found to be sure of spacing and interactions of my meds and supplements plus any reactions to any conditions or diseases is to list my supplements and medications, diseases and concerns on copilot and ask it to evaluate and tell it to bear in mind my priorites.
Copilot is great for this type of question because it can look at ALL the research and current practices, at your lists, concerns and needs and arrange it all and even give you schedules around your eating patterns.
You can just basically dump all the information on copilot.
Just be sure and check and tweek any information as needed.
Plus, I tell it to always remember this discussion and use the information if I ask about anything else medical wise that might be impacted.
I suggested copilot to a woman, on another site, who was dealing with some complicated hormone issues; she worked with copilot and then took the results to her doctor and as per her self reporting the many years of problems was resolved with recommendations from copilot and tweeking by her doctor. She was amazed.
Might at least be worth a try.
-
Like -
Helpful -
Hug
2 Reactions@SusanEllen66
I know how you feel about falling. I have cervical dystonia (CD) and am constantly reviewing that treatment approach as well as fighting off the demand to take osteo meds. I’m trying to balance CD drugs w/ Citrical, K2 (M7), D, & Magnesium Glycinate. Dystonia causes equilibrium problems. Good gravy! What I’d give to be able to ski again! lol
Thank you to everyone for sharing your experiences.
@kathleen1314 Thank you for your suggestion. I’ll give it a try. I’ve read so many peer-reviewed research, so it’d be nice to have AI do some of the legwork.
@jrenjr and @njx58
Hey - we are all struggling with these issues. I don’t want to “assume” a tone in your messages, but they sounded a little snarky. Though supplements may not be the answer, we all are trying things that may work for our metabolisms. Every body reacts differently to meds, supplements, nutrients, and etc. Some of us have problems just with absorption. This forum can present reality checks, but let’s try to prioritize sharing helpful experiences. I hear you on the supplements. There are guidelines how to take them (ie With food; with other supplements; at certain times of the day; avoiding possible interactions).
If I misinterpreted your response, then I apologize. Perhaps it was your own frustration with the whole process.
@pmhpesp5
I didn't mention any supplements. Snarky?
@pmhpesp5
Yes, and recently copilot read an accompanying information sheet which was in FARSI for me. That information was not published in the NIH publication and it contained the actual amounts of product which was used and studied.
Used well, especially for collating information and with an eye to research the AI can be a great boon. We just need to monitor and legislate it better than we have done social media. SIGH
-
Like -
Helpful -
Hug
2 Reactions@pmhpesp5
Ask to make sure that copilot can keep the information safe or how best to present and work with copilot to ensure your safety and privacy. That would ease your mind also.
-
Like -
Helpful -
Hug
2 Reactions@jrenjr Think you replied “Nice!” to @njx58’s comment. Like I said, I’m sorry if I misinterpreted your response.
@daisy17
You are in a difficult situation. From what I read, you have parathyroid disease that affects your calcium but you cannot have surgery?
If so that means that you have to have a dual action of lowering calcium and protecting your bones. Am I understanding this correctly?
I believe that this is the injection etc to which you are referring:
Radiofrequency Ablation (RFA): A needle-like probe uses heat to destroy the overactive parathyroid tissue under local anesthesia.
or sometimes this procedure may be used:
Ethanol Ablation: Medical-grade alcohol is injected directly into the parathyroid tumor to kill the overactive cells.
Some good news though is that if you can take care of the parathyroid then your osteoporosis may completely clear up or at least become much more manageable. The PTH and calcium levels though high aren't horrible it seems so that is good also.
Please continue to let us know how you do. You seem to be in good medical hands and just need time to let this problem reveal its self completely.
-
Like -
Helpful -
Hug
1 Reaction@kathleen1314
I agree with you wholeheartedly. Fascinating that it provided information in FARSI. The possibilities for AI are endless, but it must be monitored for security’s sake.