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New to Hydrea for ET

Blood Cancers & Disorders | Last Active: Aug 5 11:11am | Replies (232)

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Profile picture for ebertolis @ebertolis

Hi, @guitarjane74

I would like to know if it is not too inquisitive what side effects did you experience during these two months because I began just today to take Hydrea but with much anxiety. I did this because my platelets are at 1113 and red blood cells at 6,56 and leukocytes at 13,16, and in almost continuous growing since the January 8th when it was discovered. I have no intention to take it for years and perhaps I'll stop in a few months. The beetroot is it a food supplement or in form of vegetables?

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Replies to "Hi, @guitarjane74 I would like to know if it is not too inquisitive what side effects..."

@ebertolis I've been on Hydroxyurea four years, it's brought my blood components into the normal range. Side effects no big deal, nowhere near real chemotherapy.

@ebertolis I've been on HU since my diagnosis in October, 2023. Zero side effects so far, and my platelets dropped from 792 to hovering around 220. I started with 2 500 mg capsules daily and now take them only 4 days a week. It's a little scary at first but not as scary as what can happen if we have ET and are untreated.

@ebertolis Hi, I totally understand your anxiety..The hydrea was causing me pains in my feet..But I'll tell you that just knowing that it is Chemo (small dose however) mentally freaks me out...Try it and maybe it will be different for you..Were you feeling any symptoms? Mine was diagnosed because I had HBP that couldn't be controlled...I'm trying everything not to go on meds but if all is said and done I may try it again with more of an open mind..The beetroot is for my HBP and I also lost 35 lbs..My BP is much better...My platelets last month were 730..I go next week and I'm hoping they have come down..I'm actually on No meds at the moment.. But like I said , I'm sort of a freakazoid about medicine..I will be 70 in 5 months..I'll post again and I sincerely wish you the Best..