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Blood Cancers & Disorders | Last Active: Mar 3 5:40pm | Replies (1163)
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Yes I have MGUS and obsess about it. Information is very limited on severity and what it means. If u had a skin leision your dermatologist would biopsy it and determine whether it was malignant or progressing. MGUS has no standard of care and u just have to wait for any treatment until in turns to MM. Every other cancer has preventative steps I.E skin cancer or breast. But here we have a definite precursor to a deadly cancer and yet the medical community just says wait until it turns. Is that the most ridiculous thing you have ever heard.? Anyone feel the same?
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@sunsetchris I did read that there is concern within the medical community that MGUS/SMM/MM is the only pre-cancer situation that isn't treated at its earliest signs. I was told that this is because the treatments can do more harm than good when the diagnosis hasn't progressed to SMM/MM. But there are studies out there to see if there *is* something that can be done in the MGUS stage. I think that is part of the IMF or iStopMM study, but don't quote me on it.
So, unfortunately, the best course of action available to us now is wait and see. Hopefully one day they will have figured out how to be more proactive.
You are definitely not the only one who thinks the way you do.