Memory loss headaches and anxiety no explanation 18 years old

@jasonruiz731 Where in the north are you, may I ask? I would recommend Mayo in Rochester if you're close to that. Or, there's one in Florida, which I went to years ago. If you were near me (SC), I would suggest MUSC and/or Duke in NC. Those are two top rated hospitals that offer so much. Johns Hopkins, like you mentioned, might also be a good choice. You said your Dr's think it could be Functional Neurological Disorder - but, have they pursued any path ahead or course of treatment (besides psychiatric help)? Oftentimes, sadly, we have to be our own advocates and keep pushing for answers and/or better quality of life when we know there is something wrong inside our body. You alone know how you feel and that it's giving you red flags, and moreso that you're not willing to live in that condition. It's going to take some fight, but it'll be worth it once things start to improve and can be managed. Right now, though, you have no answers. If where you are is not giving them to you, then you might need to look outside of your borders. One of the moderators here - Colleen, maybe? - just posted a resource about Mayo program, but I'll have to see if I can find it and repost for you. Have you seen your primary Dr and asked his/her opinion? Might need to start at ground zero and see if they could make an additional referral somewhere else. Otherwise, you are an adult and you have the right to make your own medical choices. This might sound a little harsh - not trying to be - but, you need to somewhat tune out your parents' voices in regards to this if they're not being helpful. Utilize them, though, yes!! Talk to them, share your struggles if you're willing and explain that you're not OK and need to find out what's going on FOR YOU. It's your life, not theirs. I'm dealing with a plateful myself, and I've had to do this on my own, so I know the struggles. I've had to jump from one Dr to the next and finally I get somewhere and then something new gets thrown on top. It's ever changing, but all good. Have you considered (or maybe you already have) reading medical journals? I've found tons of helpful information there because they document cases that many people don't hear about with "strange symptoms" and rare disorders (not saying yours is). Just a thought. I'm going to be thinking about this and I'll see what I can dig up. In the meantime, hold your head high and don't give up! You are supported here.

@rivermaya34
Yes my primary has told me that he doesn’t think that it’s anything serious which I know that it’s something
I live in the northern Virginia dc area thank you for your support I keep going to ers hoping they do something but have found that it’s ineffective so I need a new pathway and it’s hard trying to advocate when you don’t feel well my nuerologist really just told me to do cbt that’s it thank you if you could repost the moderators comment thank you also I have no idea how to make appointments

@sandy8043
Yes I did with and without

@jasonruiz731 Just brain or spinal cord, too? Did you have a spinal tap to examine cerebral spinal fluid?

@jasonruiz731 Just brain or spinal cord, too? Did you have a spinal tap to examine cerebral spinal fluid?

@jasonruiz731 Absolutely! Let me see what I can find and I'll either drop it here or dm you with the info. Gotcha - that helps to know location. When I went to Mayo in 2007, I was at the tail end of high school, so my parents took care of everything to go, but it was my idea and they supported it. The campus was so serene and absolutely stunningly beautiful, so in case you're in need of a "time out" to reflect and just pause, that might not be a bad place to go. I'm so sorry - I had a Dr once tell me that I'd just have to "live with the pain" (and that was after they lied to me about it being their fault) because they were at a loss for what to do. I'd rather stark honesty than sugar-coated lies or misdirecting. My neurologist I have now is 1,000% the opposite - he's a total godsend. The problem with ER's is a lot of times they have tunnel vision and don't take the time to stand back and look at the person as a whole - i.e. the big picture. That really matters! As for other Dr appointments locally, do you have the ability to choose and make your own appointments, or do you have to submit to your parents' ways? (Not asking to judge or point fingers at them; just so I know how to offer suggestions or support) In the meantime, if you had to pick what your biggest frustration (symptom wise) is - or two - what would that be? Asking in case myself or anyone else here can offer some thoughtful suggestions that may be only temporary, but might help uplift your spirit and hopefully give some relief. I truly empathize with you, and I'm so sorry you're struggling. :'( As far as Mayo appointments go - I'm sure insurance is a big factor - but, the process itself likely isn't too hard. If you look to the right side, there's actually a little blurb that says, "Start your appointment request." I'm sure you could start there, or search the help section, talk to moderators or call MC and find out what's required. They might be able to offer some insight.

@rivermaya34 thing is I don’t have money to go I’m free to make my own appointments but I’m running out of options of where to go I’m not sure how to make appointments or even how to go about it so around northern Virginia is my only option

@rivermaya34 thing is I don’t have money to go I’m free to make my own appointments but I’m running out of options of where to go I’m not sure how to make appointments or even how to go about it so around northern Virginia is my only option

@jasonruiz731
I think the memory and just the fatigue is the biggest symptom

@jasonruiz731
I think the memory and just the fatigue is the biggest symptom