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@rivermaya34
Yes my primary has told me that he doesn’t think that it’s anything serious which I know that it’s something
I live in the northern Virginia dc area thank you for your support I keep going to ers hoping they do something but have found that it’s ineffective so I need a new pathway and it’s hard trying to advocate when you don’t feel well my nuerologist really just told me to do cbt that’s it thank you if you could repost the moderators comment thank you also I have no idea how to make appointments

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Replies to "@rivermaya34 Yes my primary has told me that he doesn’t think that it’s anything serious which..."

@jasonruiz731 Absolutely! Let me see what I can find and I'll either drop it here or dm you with the info. Gotcha - that helps to know location. When I went to Mayo in 2007, I was at the tail end of high school, so my parents took care of everything to go, but it was my idea and they supported it. The campus was so serene and absolutely stunningly beautiful, so in case you're in need of a "time out" to reflect and just pause, that might not be a bad place to go. I'm so sorry - I had a Dr once tell me that I'd just have to "live with the pain" (and that was after they lied to me about it being their fault) because they were at a loss for what to do. I'd rather stark honesty than sugar-coated lies or misdirecting. My neurologist I have now is 1,000% the opposite - he's a total godsend. The problem with ER's is a lot of times they have tunnel vision and don't take the time to stand back and look at the person as a whole - i.e. the big picture. That really matters! As for other Dr appointments locally, do you have the ability to choose and make your own appointments, or do you have to submit to your parents' ways? (Not asking to judge or point fingers at them; just so I know how to offer suggestions or support) In the meantime, if you had to pick what your biggest frustration (symptom wise) is - or two - what would that be? Asking in case myself or anyone else here can offer some thoughtful suggestions that may be only temporary, but might help uplift your spirit and hopefully give some relief. I truly empathize with you, and I'm so sorry you're struggling. :'( As far as Mayo appointments go - I'm sure insurance is a big factor - but, the process itself likely isn't too hard. If you look to the right side, there's actually a little blurb that says, "Start your appointment request." I'm sure you could start there, or search the help section, talk to moderators or call MC and find out what's required. They might be able to offer some insight.

@jasonruiz731
I’m sorry you are dealing with this. I agree with many of the suggestions posted. When strange things occur suddenly, I’d think of the following possibilities: 1) Could recent vaccinations (COVID, Flu, RSV, etc.) have caused these symptoms; 2) Are you taking medications, supplements, etc., that could be adversely interacting causing these side effects; 3) Tick Borne Diseases can truly “mess” a person up (Sandy’s suggestion). Do you have any rashes that suddenly appeared ( typical for tick borne diseases); 4) Testing also for Chronic Fatigue Syndrome is another consideration; 5) Auto-immune Disorders are difficult to diagnose, but doctors should still look at your entire medical history, immunizations, medications, and also consider your family history. Has anyone else ever experienced these symptoms?
Your PCP needs to be pressured to understand that this is real and that you need referrals. If this doctor is not helping you, then reach out to friends or research online to find better PCP’s.
Unfortunately, ER’s aren’t the best place to start.
Doctors usually start out with blood work that rules out certain diseases and conditions (Definitely explain your insurance position because some tests are very expensive; my neurologist was surprised by a $7,000 charge on one that ruled out Parkinson’s for me).
Scans and MRI’s are next.
Call in any favors from people who could help connect you w/specialists and hospitals.
Wish I could help more. Good luck.