I am on 25 mg . I do have an appointment at Sleep Center at Mayo on February 26. It is my first visit there . It is to evaluate my RLS, peripheral neuropathy and sleep apnea. I will certainly address whe ther I should be doing the B6 and magnesium
I had a hospitalist doctor prescribe Vitamin B6 and magnesium glycinate for my peripheral neuropathy and Restless Leg Syndrome at bedtime. I have noticed a drastic reduction of symptoms. It has been about 3 weeks.
@maryaw I am trying to figure out what the differences are with all the magnesiums, and I had been taking Mag Oxide 400 for years due to leg cramps and it helps with bowels and is great for all muscle and heart function, but seems now the bigger prescribed form is , as you said the Magnesium Glycinate. I want to ask how much and how long did you start to feel better?
The doctor prescribed magnesium oxalate 400 mg which I took for the 6 days. When I went to buy it, I decided to try the magnesium glycinate 240 mg on the advice of several other medical friends. Seems to be working. Pharmacist told me either one would be fine. I bought it at Costco.
I think what one eats is more important than "taking" anything. Avoiding sugar and sugar substitutes, soda pop, fatty meats, full fat cheeses, Concentrate on fresh and often raw or slightly cooked vegetables, fruits, seafood
meats. I avoid most dairy because I am lactose intolerant. Recently I have been drinking a "cocktail" of 8 oz pineapple juice and 8 oz coconut milk for breakfast and find the edema in legs and feet is rapidly disappearing and with that some pain goes as well,
@marthadean
Hi,
I too control my neuropathy with food exercise and diet but supplements can help. I usually walk my Berners-Lee twice sometimes 3 times a day ( keep this in mind). When my iron and ferritin where in the low single digits I had transfusions. I thought by eating the best foods I could elevate my iron. I ate spinach every day for nothing because it needs vitamins C and D to be absorbed. My vitamin D needed a supplement to get back to the double digits, even though I was outside everyday!
So I also drink cranberry juice with my spinach. I also take a multi- vitamin. I do try to eat well and exercise. Massaging my feet everynight and mornung helps the most.
JFN
I know with certainty that my pains are much improved every time I go on a low carb diet. I eat meats, eggs, some cheese, fish and fresh fruits and veggies, And yes ... soon as I fall off and stop eating low carb and go to eating sugars , pain is back. I wish I had an answer why I cannot stop , maybe there is something to "sugar addiction"
@heartnurseva
I know the feeling about sugar and I do think it has an inflammatory effect. Like you, I eat healthy--my one difference is no wheat, rye or barley as my neuropathy is likely due to my celiac disease--so my strict diet will be for a lifetime. If only, I could avoid sugar. I try to go for foods that do not contain added sugar. I also try to not to consume sugary foods on weekdays. My neuropathy is mostly tolerable but now I am trying to deal with pain of scar tissue resulting from shin shave biopsy. I found out that a steroid injection could be detrimental to people with neuropathy and celiac so I am opting for a more holistic approach including massage, diet, and gentle exercise. This natural approach may take longer but is probably safer for me and I am sure that without the sugar in my body I might heal faster. Also, I am aware of weather as a factor--very extreme cold here in NYC. This can slow healing. But thank you for raising the issue about sugar addiction. We can be our own best friend by eliminating or curtailing it.
@marthadean
Hi,
I too control my neuropathy with food exercise and diet but supplements can help. I usually walk my Berners-Lee twice sometimes 3 times a day ( keep this in mind). When my iron and ferritin where in the low single digits I had transfusions. I thought by eating the best foods I could elevate my iron. I ate spinach every day for nothing because it needs vitamins C and D to be absorbed. My vitamin D needed a supplement to get back to the double digits, even though I was outside everyday!
So I also drink cranberry juice with my spinach. I also take a multi- vitamin. I do try to eat well and exercise. Massaging my feet everynight and mornung helps the most.
JFN
@jfn
All one can do is try! I do not know what a Berners-Lee is but I can't walk a great deal as my hips and knees don't cooperate. I do believe red meats are a better source of iron than vegetables.
I wish I could massage my feet but because of spinal stenosis I can't bend down to get to my feet and becasue of arthritis I cannot "bring them up to meet me" But all is well - the four wheel
rolater is the best invention in years.
I have mild neuropathy in feet and hands. One foot has lots of tingling/pins and needles which is the main problem. I am 78 years old, male, diagnosed with type 2 diabetes 18 years ago.
I daily started taking r alpha lipid acid two weeks ago , 300 mg. I increased that to 600 mg daily two days ago. It's still a little.early to tell if it makes a difference.
I also take magnesium citrate, vitamin D, vitamin B12, for neuropathy and leg cramps. I take mounjaro, Jardine and metformin for diabetes which is now well controlled.
I started the r alpha lipid acid in an attempt to further decrease my dosing of gabapentin. My highest dose was 2400 mg daily which I have pared down to 1500 mg daily. But am now kind of stuck on 1500 mg, otherwise the tingling in my foot wakes me up at night.
@jfn
All one can do is try! I do not know what a Berners-Lee is but I can't walk a great deal as my hips and knees don't cooperate. I do believe red meats are a better source of iron than vegetables.
I wish I could massage my feet but because of spinal stenosis I can't bend down to get to my feet and becasue of arthritis I cannot "bring them up to meet me" But all is well - the four wheel
rolater is the best invention in years.
@marthadean
Hi ha autocorrect for the loss. I was alluding to the time I spend walking my Bernese Mountain Dogs, aka Berners. Meaning rhat I spend time outside, therefore I should not need vit D.
As for massaging your feet, anyball will do, just roll it around enough that all of your foot has had contact with pressure, especially the toes. Get the blood flowing! I also have filled a coke bottle with water, and rolled that around. Find the solution for you, it is there!
@crowhunter yep there are a lot of people vying for your money. Sadly
Things I have learned about neuropathy.
Your running a marathon not a sprint.
There is no cure— unless you are one of the few that can pinpoint what caused/causing the neuropathy. Then you might be in 🍀. I hope so.
Damaged nerves don’t usually regenerate. Your job is to provide the healthiest environment for nerve regeneration or to keep what you have healthy. Most of the supplements you see people using may help alleviate the symptoms. R-alpha lipoic acid is one. Magnesium glycinate. L-carnitine. B-12 injections are common ones you see. Most if these supplements are anti- inflammatory. Are known to be good for nerve heath. They do not cure but they may help in the long run.
A number of people like me, find a low carb diet helps. It is worth the trouble. Those wondeful tortillas chips will shoot my pain levels sky high!
Exercise helps. Increased blood flow is important. If you are not an exercisor
Now is the time. Calf raises are good circulation movers.
Vaso- dilators are better than vaso- constrictors.
Most of us, use crazy things that do help. You will see people get relief from Vicks vapor rub. Magnesium lotion I went through a period of awful cramping now, electrolytes are part of my daily consumption. Works for me. I use LMNT or Re-lyte. Both are high sodium magnesium potassium .
Education is your best friend. Read the boards.
On the supplemental use good quality third party tested. No they aren’t the cheapest but your body will thank you for not adding more junk in.
Remember long term goal. You will not see overnight success.
Sorrowfully you will probably end up knowing more than your nice doctor. Don’t be afraid to push back. Very few of them will fire you$$ some will learn from you
If you do your homework
R u in pain?
Hugs, we all need them .
debbieo
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I am on 25 mg . I do have an appointment at Sleep Center at Mayo on February 26. It is my first visit there . It is to evaluate my RLS, peripheral neuropathy and sleep apnea. I will certainly address whe ther I should be doing the B6 and magnesium
@maryaw I am trying to figure out what the differences are with all the magnesiums, and I had been taking Mag Oxide 400 for years due to leg cramps and it helps with bowels and is great for all muscle and heart function, but seems now the bigger prescribed form is , as you said the Magnesium Glycinate. I want to ask how much and how long did you start to feel better?
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Hug
1 ReactionThe doctor prescribed magnesium oxalate 400 mg which I took for the 6 days. When I went to buy it, I decided to try the magnesium glycinate 240 mg on the advice of several other medical friends. Seems to be working. Pharmacist told me either one would be fine. I bought it at Costco.
@marthadean
Hi,
I too control my neuropathy with food exercise and diet but supplements can help. I usually walk my Berners-Lee twice sometimes 3 times a day ( keep this in mind). When my iron and ferritin where in the low single digits I had transfusions. I thought by eating the best foods I could elevate my iron. I ate spinach every day for nothing because it needs vitamins C and D to be absorbed. My vitamin D needed a supplement to get back to the double digits, even though I was outside everyday!
So I also drink cranberry juice with my spinach. I also take a multi- vitamin. I do try to eat well and exercise. Massaging my feet everynight and mornung helps the most.
JFN
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Hug
2 Reactions@heartnurseva
I know the feeling about sugar and I do think it has an inflammatory effect. Like you, I eat healthy--my one difference is no wheat, rye or barley as my neuropathy is likely due to my celiac disease--so my strict diet will be for a lifetime. If only, I could avoid sugar. I try to go for foods that do not contain added sugar. I also try to not to consume sugary foods on weekdays. My neuropathy is mostly tolerable but now I am trying to deal with pain of scar tissue resulting from shin shave biopsy. I found out that a steroid injection could be detrimental to people with neuropathy and celiac so I am opting for a more holistic approach including massage, diet, and gentle exercise. This natural approach may take longer but is probably safer for me and I am sure that without the sugar in my body I might heal faster. Also, I am aware of weather as a factor--very extreme cold here in NYC. This can slow healing. But thank you for raising the issue about sugar addiction. We can be our own best friend by eliminating or curtailing it.
-
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Helpful -
Hug
1 Reaction@jfn
All one can do is try! I do not know what a Berners-Lee is but I can't walk a great deal as my hips and knees don't cooperate. I do believe red meats are a better source of iron than vegetables.
I wish I could massage my feet but because of spinal stenosis I can't bend down to get to my feet and becasue of arthritis I cannot "bring them up to meet me" But all is well - the four wheel
rolater is the best invention in years.
I have mild neuropathy in feet and hands. One foot has lots of tingling/pins and needles which is the main problem. I am 78 years old, male, diagnosed with type 2 diabetes 18 years ago.
I daily started taking r alpha lipid acid two weeks ago , 300 mg. I increased that to 600 mg daily two days ago. It's still a little.early to tell if it makes a difference.
I also take magnesium citrate, vitamin D, vitamin B12, for neuropathy and leg cramps. I take mounjaro, Jardine and metformin for diabetes which is now well controlled.
I started the r alpha lipid acid in an attempt to further decrease my dosing of gabapentin. My highest dose was 2400 mg daily which I have pared down to 1500 mg daily. But am now kind of stuck on 1500 mg, otherwise the tingling in my foot wakes me up at night.
Best wishes.
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Helpful -
Hug
1 ReactionCorrections to above: Jardine should read Jardiance. R alpha lipid acid should read r alpha lipoic acid.
@marthadean
Hi ha autocorrect for the loss. I was alluding to the time I spend walking my Bernese Mountain Dogs, aka Berners. Meaning rhat I spend time outside, therefore I should not need vit D.
As for massaging your feet, anyball will do, just roll it around enough that all of your foot has had contact with pressure, especially the toes. Get the blood flowing! I also have filled a coke bottle with water, and rolled that around. Find the solution for you, it is there!
-
Like -
Helpful -
Hug
1 Reaction@crowhunter yep there are a lot of people vying for your money. Sadly
Things I have learned about neuropathy.
Your running a marathon not a sprint.
There is no cure— unless you are one of the few that can pinpoint what caused/causing the neuropathy. Then you might be in 🍀. I hope so.
Damaged nerves don’t usually regenerate. Your job is to provide the healthiest environment for nerve regeneration or to keep what you have healthy. Most of the supplements you see people using may help alleviate the symptoms. R-alpha lipoic acid is one. Magnesium glycinate. L-carnitine. B-12 injections are common ones you see. Most if these supplements are anti- inflammatory. Are known to be good for nerve heath. They do not cure but they may help in the long run.
A number of people like me, find a low carb diet helps. It is worth the trouble. Those wondeful tortillas chips will shoot my pain levels sky high!
Exercise helps. Increased blood flow is important. If you are not an exercisor
Now is the time. Calf raises are good circulation movers.
Vaso- dilators are better than vaso- constrictors.
Most of us, use crazy things that do help. You will see people get relief from Vicks vapor rub. Magnesium lotion I went through a period of awful cramping now, electrolytes are part of my daily consumption. Works for me. I use LMNT or Re-lyte. Both are high sodium magnesium potassium .
Education is your best friend. Read the boards.
On the supplemental use good quality third party tested. No they aren’t the cheapest but your body will thank you for not adding more junk in.
Remember long term goal. You will not see overnight success.
Sorrowfully you will probably end up knowing more than your nice doctor. Don’t be afraid to push back. Very few of them will fire you$$ some will learn from you
If you do your homework
R u in pain?
Hugs, we all need them .
debbieo