1. < Spine Health

Chronic Back Pain for Years

Posted by jlfisher56 @jlfisher56, May 2, 2017

6 back surgeries (extensive cervical and lumbar fusions) with neurological complications. Left with chronic pain. Accident happened in Nursing career 1992 and worked with first fusions until 1999 (failed fusions). At my age, and as a former nurse educator, I never wanted to had to rely on medication/s for the severe pain. Having thoroughly exhausted exploring sites using non-pharmaceutical methods, using psychological methods, biofeedback, trying to accept my limitations, i.e., I still believe somewhere...out there...is hope. The strong medicine has caused gastroparesis, further complicating my health problems. They are too numerous to write and I will not focus on them. I am looking for "help" and guidance. If I can be of assistance to anyone throughout their trials, (perhaps similar to some of what I have gone through), I will.

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Marield65. Marie | @marield65 | Jul 19, 2017
In reply to @jess1313 "hi my name is jessie i had lumbar fusion 1999 and been in pain since did..." + (show)
@jess1313

hi my name is jessie i had lumbar fusion 1999 and been in pain since did everything possible i csnt tske it anymore im alone no one to care for me

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Hi, I am Marie, and also had a fusion L4&5, now wants to add L3 to the fusion. What happened that yours didn't take? Was the Dr. able to fix it or it just didn't take the pain away? After several years my fusion caused a cyst on my spine that had to be removed. It grew right between the fusion. How are you now and what are you doing for the pain?

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Lisa Lucier | @lisalucier | Jul 20, 2017
In reply to @marield65 "I am Marie (marield65) and can connect with most of you with 5 back surgeries and..." + (show)
@marield65

I am Marie (marield65) and can connect with most of you with 5 back surgeries and just had a knee replacement and all I know is pain, and how it has robbed my life.
BUT I wrote a long letter to all of you, in pain,laying down with my iPad and pushed some buttons that I wasn't supposed to and the 2 letters I wrote are somewhere in space and I can't retrieve them. I am tired now but I will be back with my story because I want some feedback on a 2nd fusion the Dr. wants to do.
I will write back. Sorry I lost my letters.
Hi Mickey, hi Jeff. From Marie

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Hi, @marield65. I noted you mentioned having knee replacement surgery. I wanted to be sure you’d met @contentandwell, @beatricefay , @niazumbanut , @gailfaith and @maryx1937, some of the Connect members who have discussed post-knee replacement surgery here: https://connect.mayoclinic.org/discussion/after-knee-replacement-surgery/?pg=1.

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Ronald Dezego Sr | @beatles | Jul 20, 2017

Stop E-Mails !!!!!!!!

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1 reply
jenapower | @jenapower | Jul 20, 2017

Go to the top of this page, open the drop down menu on the right. Go into your account and turn off all email at the bottom of the page.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 20, 2017
In reply to @beatles "Stop E-Mails !!!!!!!!" + (show)
@beatles

Stop E-Mails !!!!!!!!

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Hi Ronald,
Here are instructions on how you can manage your email notifications from Connect https://connect.mayoclinic.org/discussion/tip-how-to-update-your-notification-settings/

If you have any questions, please send me a message using this form: https://connect.mayoclinic.org/contact-a-community-moderator/

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JK | @contentandwell | Jul 22, 2017
In reply to @marield65 "I am Marie (marield65) and can connect with most of you with 5 back surgeries and..." + (show)
@marield65

I am Marie (marield65) and can connect with most of you with 5 back surgeries and just had a knee replacement and all I know is pain, and how it has robbed my life.
BUT I wrote a long letter to all of you, in pain,laying down with my iPad and pushed some buttons that I wasn't supposed to and the 2 letters I wrote are somewhere in space and I can't retrieve them. I am tired now but I will be back with my story because I want some feedback on a 2nd fusion the Dr. wants to do.
I will write back. Sorry I lost my letters.
Hi Mickey, hi Jeff. From Marie

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@marield65 Marie, don't you hate that when you hit something and all you wrote is gone? That happened to me last night on a different post. I was too tired to recreate then but will have to today.
JK

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JK | @contentandwell | Jul 22, 2017
In reply to @kadydash "When my doc told me I needed back surgery I had trouble finding any patient to..." + (show)
@kadydash

When my doc told me I needed back surgery I had trouble finding any patient to talk to. Due to the privacy laws my surgeon could not connect me with any of his previous patients. It was frustrating. Once I had my surgery, I began keeping a diary with my notes on what to expect, what I needed at the hospital, what mobility tools would have helped, what exercises were most effective and so forth. I just launched this book on Amazon, and I it will be free next weekend (Sunday and Monday - July 9 and July 10). I want to give a shout here so people can bookmark the book at get it for free - I wish I had this information before my surgery! The book name is "Step by Step Back Surgery. A Recovery Guide: What your doctor can’t tell you" by Kady Dash.

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@kadydash Kady, I guess I understand the privacy issue but I think someone on your doctor's staff should ask patients who have undergone the same thing if they would mind sharing. I know I would be happy to if someone was going through the same issues.
JK

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KadyDash | @kadydash | Jul 22, 2017
In reply to @kadydash "When my doc told me I needed back surgery I had trouble finding any patient to..." + (show)
@kadydash

When my doc told me I needed back surgery I had trouble finding any patient to talk to. Due to the privacy laws my surgeon could not connect me with any of his previous patients. It was frustrating. Once I had my surgery, I began keeping a diary with my notes on what to expect, what I needed at the hospital, what mobility tools would have helped, what exercises were most effective and so forth. I just launched this book on Amazon, and I it will be free next weekend (Sunday and Monday - July 9 and July 10). I want to give a shout here so people can bookmark the book at get it for free - I wish I had this information before my surgery! The book name is "Step by Step Back Surgery. A Recovery Guide: What your doctor can’t tell you" by Kady Dash.

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"Should have". But it did not happen. I hear exactly the same thing from a number of other people in the reviews posted on my book. I am so glad I was able to help others! The book was #1 Best seller in Physical Impairments category for 30 hours! It felt great! Thank you for taking time to comment!

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Marield65. Marie | @marield65 | Jul 22, 2017
In reply to @kadydash "When my doc told me I needed back surgery I had trouble finding any patient to..." + (show)
@kadydash

When my doc told me I needed back surgery I had trouble finding any patient to talk to. Due to the privacy laws my surgeon could not connect me with any of his previous patients. It was frustrating. Once I had my surgery, I began keeping a diary with my notes on what to expect, what I needed at the hospital, what mobility tools would have helped, what exercises were most effective and so forth. I just launched this book on Amazon, and I it will be free next weekend (Sunday and Monday - July 9 and July 10). I want to give a shout here so people can bookmark the book at get it for free - I wish I had this information before my surgery! The book name is "Step by Step Back Surgery. A Recovery Guide: What your doctor can’t tell you" by Kady Dash.

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Lady is your book still available.?marie. Marield65

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KadyDash | @kadydash | Jul 23, 2017
In reply to @kadydash "When my doc told me I needed back surgery I had trouble finding any patient to..." + (show)
@kadydash

When my doc told me I needed back surgery I had trouble finding any patient to talk to. Due to the privacy laws my surgeon could not connect me with any of his previous patients. It was frustrating. Once I had my surgery, I began keeping a diary with my notes on what to expect, what I needed at the hospital, what mobility tools would have helped, what exercises were most effective and so forth. I just launched this book on Amazon, and I it will be free next weekend (Sunday and Monday - July 9 and July 10). I want to give a shout here so people can bookmark the book at get it for free - I wish I had this information before my surgery! The book name is "Step by Step Back Surgery. A Recovery Guide: What your doctor can’t tell you" by Kady Dash.

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@marield65 Yes. This forum does not allow posting of links, so you need search for it by name on Amazon. The book name is “Step by Step Back Surgery. A Recovery Guide: What your doctor can’t tell you” by Kady Dash.

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