Chronic Back Pain for Years

Posted by jlfisher56 @jlfisher56, May 2, 2017

6 back surgeries (extensive cervical and lumbar fusions) with neurological complications. Left with chronic pain. Accident happened in Nursing career 1992 and worked with first fusions until 1999 (failed fusions). At my age, and as a former nurse educator, I never wanted to had to rely on medication/s for the severe pain. Having thoroughly exhausted exploring sites using non-pharmaceutical methods, using psychological methods, biofeedback, trying to accept my limitations, i.e., I still believe somewhere…out there…is hope. The strong medicine has caused gastroparesis, further complicating my health problems. They are too numerous to write and I will not focus on them. I am looking for “help” and guidance. If I can be of assistance to anyone throughout their trials, (perhaps similar to some of what I have gone through), I will.

Interested in more discussions like this? Go to the Spine Health group.

@marield65

I am Marie (marield65) and can connect with most of you with 5 back surgeries and just had a knee replacement and all I know is pain, and how it has robbed my life.
BUT I wrote a long letter to all of you, in pain,laying down with my iPad and pushed some buttons that I wasn’t supposed to and the 2 letters I wrote are somewhere in space and I can’t retrieve them. I am tired now but I will be back with my story because I want some feedback on a 2nd fusion the Dr. wants to do.
I will write back. Sorry I lost my letters.
Hi Mickey, hi Jeff. From Marie

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I want to say a quick hello to you and I have been on antidepressants for 45 years. The meds have been improving all the time, thank God.
What part of your body do you put your patch and can you go swimming with it on?
You will see my reply down the bottom to Jessie.

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@jess1313. I hear the desperation in your post. Please let us know more about your situation and what medications you are taking. Are you seeing a doctor now, and what is your diagnosis. There are many things that can help with pain, perhaps you will find both information on some alternatives to what you have tried, and some comraderie here. You say you are alone with no one to care for you. What is your age? You may be able to find assistance through Medicare or another way. There are many resources on this site, and many others who have had experiences similar to yours and can maybe give you new ideas. If nothing else, we are here to hear you and try to help you cope with your reality. Don’t give up! Help us understand your situation. Gail B Ledesma

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hi ive been javing chronic back pain for 18 years after my surgery and seems to be getting worse by age i have no life ive isolated myself habe depression and anxiety now sometimes i evan get crazy thought to harm myself but im not taking the coward way out my son needs me miight have been different if i didnt have my son but why dont dr understand tjeres a reason for pain not just keep giving painkillers and tell u to deal with it im tired and drained

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@jess1313

hi ive been javing chronic back pain for 18 years after my surgery and seems to be getting worse by age i have no life ive isolated myself habe depression and anxiety now sometimes i evan get crazy thought to harm myself but im not taking the coward way out my son needs me miight have been different if i didnt have my son but why dont dr understand tjeres a reason for pain not just keep giving painkillers and tell u to deal with it im tired and drained

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Hi @jess1313, welcome to Connect.
I moved your message to this existing discussion about chronic back pain. Like the members you’ve already met here, many people talk about constant pain affecting their mental health and social life. You notice that several members who are active in the Chronic Pain group also participate in the Mental Health group (https://connect.mayoclinic.org/group/mental-health/). I invite you to follow and take part in both groups.

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@jess1313

hi my name is jessie i had lumbar fusion 1999 and been in pain since did everything possible i csnt tske it anymore im alone no one to care for me

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I second your comments, @jenapower Chronic pain/illness can be incredibly isolating and almost as often misunderstood or misinterpreted by others who encounter the patient struggling with it. My wife suffered from chronic pain from an undiscovered spiral spinal fracture for years before her brain cancer diagnosis. It astounded me how many in our circle of family and friends tossed my wife’s feelings aside as they ‘decided’ what was ‘really’ her problem. I believe it is far too common an occurrence and the impacts can last a long, long time.

Most in my wife’s and my family chalked her chronic pain up to her being a hypochondriac or attention seeker. It was frustrating, angering, and sad for both of us. We did our best to work through our feelings on this, but there was no doubt it was damaging to our relationships with those individuals.

Luckily my wife had the courage of her own convictions to stick with her care plans, etc on her own and with me as her wingman.

It wasn’t until years after her brain cancer diagnosis that some of those people acknowledged her journey through chronic pain — and several never did. Sad for my wife, but sadder for the others.

The isolation breaking is what first drew me here to Connect!

Peace & Strength

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@marield65

I am Marie (marield65) and can connect with most of you with 5 back surgeries and just had a knee replacement and all I know is pain, and how it has robbed my life.
BUT I wrote a long letter to all of you, in pain,laying down with my iPad and pushed some buttons that I wasn’t supposed to and the 2 letters I wrote are somewhere in space and I can’t retrieve them. I am tired now but I will be back with my story because I want some feedback on a 2nd fusion the Dr. wants to do.
I will write back. Sorry I lost my letters.
Hi Mickey, hi Jeff. From Marie

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Hello @marield65 My wife used a fentanol patch for several months towards tge end of her illness. She slternated wearing tgem on her shoulder blades. She also found relief through the use of ABHR suppositories and then the same in a cream applied to her neck or inside of her wrists.

Peace & Strength

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@jess1313

hi my name is jessie i had lumbar fusion 1999 and been in pain since did everything possible i csnt tske it anymore im alone no one to care for me

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Thank you for identifying a very major issue….isolation based on ridicule and lack of unconditional acceptance from friends and family. At 75 and moving through the process of finding tolerance solutions to CMPS, and small fiber neuropathy, I find that, while smaller in number now because of my deselection process, the circle of friends that I choose to keep are supportive in every way. And having my own “wingman” has been an amazingly important asset. Also…I .want to give a shout out to the practice of mindfulness and meditation as well as a daily yoga program. Add that to weekly massage and carefully selected MM and I can find joy in living.

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@jess1313. Do you take antidepressants? I started Celexa about 6 years ago, and it made my life so much better than it was up till then. Doctors are trained to try to make you better, but they don’t know Everything. Isolation because of pain and medications is something that happens to many of us. Before we know it, we’re totally alone. People find it hard to deal with our pain and complaints and the effects of medications. But, here we’ve all dealt with what you are going through. I hope you find encouragement and acceptance here, and that you will continue to share more about yourself with us.
– How old are you?
– What medications are you taking?
– Are you seeing a doctor or therapist now?
Thanks, Gail B. Ledesma

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@jess1313

hi ive been javing chronic back pain for 18 years after my surgery and seems to be getting worse by age i have no life ive isolated myself habe depression and anxiety now sometimes i evan get crazy thought to harm myself but im not taking the coward way out my son needs me miight have been different if i didnt have my son but why dont dr understand tjeres a reason for pain not just keep giving painkillers and tell u to deal with it im tired and drained

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Please do not give up. There are a lot of us, who deal with chronic pain, and ask ourselves, where this pain is coming from and sometimes give up hope to get better. But please look at the positive things in live, and say, things could be worse! Please find a friend to talk to soon. Thinking of you, and feeling your pain.

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@jess1313

hi my name is jessie i had lumbar fusion 1999 and been in pain since did everything possible i csnt tske it anymore im alone no one to care for me

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Hi !! I’m Jeri. I have a failed fusion and sooooooo much pain. I have family but they either don’t believe the intensity or put me down for taking strong pain meds. I too feel i am at the end of my rope.
Peace

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@jess1313

hi my name is jessie i had lumbar fusion 1999 and been in pain since did everything possible i csnt tske it anymore im alone no one to care for me

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Hi @jeriliz I hear you! In my wife’s chronic pain situation her mantra became ‘keep your own counsel’.

She tired of so many either offering advice as to what she should try (often based on no experience) and the all too common unfounded criticism of what methods and how she was trying to manage her pain.

She came to believe she was investing too much of her energy explaining herself and not enough of it caring for herself. So she would simply say ‘I am doing what my doctor ordered’ and carry on while doing her best to ignore the ‘peanut gallery’.

Peace & Strength

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@jess1313

hi my name is jessie i had lumbar fusion 1999 and been in pain since did everything possible i csnt tske it anymore im alone no one to care for me

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Jessie,

I’m new here, too. Haven’t found solutions, but have found people to share with. Wish I had more spirituality. But there’s a thread for that, too. Best wishes.

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