Chronic Back Pain for Years

Hi Marie, I'm Juliann. Your words, "all I know is pain, and how it has robbed my life," really struck a chord with me. I've been in pain for 37 years, and suffer from treatment resistant depression and PTSD. I've been on anti-depressants most of my life, and until lately, they did nothing for me. But after getting on the right medication and getting a part-time job, I'm doing much better. I still struggle with how pain and doctors and robbed my life from me. I do see a therapist once a month and it helps a lot. I do use a Fentanyl patch for my pain, maybe it would help you too. Please hang in there, life can get better.

hi my name is jessie i had lumbar fusion 1999 and been in pain since did everything possible i csnt tske it anymore im alone no one to care for me

Hi to my friends Juliann,robeaver, Jessie. My name isMarie and I already met Juliann. I want to tell Jessie that I am your friend. You are not alone, now you have this group to give you support and hope.
I have been there. I am a young 71 year old and whatever you or some one else had, I had it. I think I was born under a black cloud but then I think of what I do have in my life and count my blessings.
Eventually I will tell more about myself but right now I think you need some positive attention.
Things will not always be this bad. Tell me something about your self and what you do to occupy your time. You can't spend the day thinking about your pain because that will make it worse. Who do you have in your life that you can talk to? And you can always write to us.
When you are down, open your door and smell the air. It will always be new and fresh and embrace the new and take one day at a time. Don't even think about tomorrow. "Unless you have a Dr.s appointment " ha ha don't forget that.
Talk to me, and thanks for joining the group, it will be your family. I am a newbie also. I joined 1 week ago and I have learned so much.
I hope we can help you and you have to do your part and help us get to know you and your pain.
Marie (marield65)

Jessie, I understand it's very lonely be having pain. I do have family but they got really sick of dealing with it. Then I end up feeling really guilty. I'm sorry that you're by yourself I hope that you can find someone to talk to and be friends with that might be kind enough to help you. Even when you do have people around, it's still a very lonely and isolating.

I want to say a quick hello to you and I have been on antidepressants for 45 years. The meds have been improving all the time, thank God.
What part of your body do you put your patch and can you go swimming with it on?
You will see my reply down the bottom to Jessie.

@jess1313. I hear the desperation in your post. Please let us know more about your situation and what medications you are taking. Are you seeing a doctor now, and what is your diagnosis. There are many things that can help with pain, perhaps you will find both information on some alternatives to what you have tried, and some comraderie here. You say you are alone with no one to care for you. What is your age? You may be able to find assistance through Medicare or another way. There are many resources on this site, and many others who have had experiences similar to yours and can maybe give you new ideas. If nothing else, we are here to hear you and try to help you cope with your reality. Don't give up! Help us understand your situation. Gail B Ledesma

hi ive been javing chronic back pain for 18 years after my surgery and seems to be getting worse by age i have no life ive isolated myself habe depression and anxiety now sometimes i evan get crazy thought to harm myself but im not taking the coward way out my son needs me miight have been different if i didnt have my son but why dont dr understand tjeres a reason for pain not just keep giving painkillers and tell u to deal with it im tired and drained

Hi @jess1313, welcome to Connect.
I moved your message to this existing discussion about chronic back pain. Like the members you've already met here, many people talk about constant pain affecting their mental health and social life. You notice that several members who are active in the Chronic Pain group also participate in the Mental Health group (https://connect.mayoclinic.org/group/mental-health/). I invite you to follow and take part in both groups.

I second your comments, @jenapower Chronic pain/illness can be incredibly isolating and almost as often misunderstood or misinterpreted by others who encounter the patient struggling with it. My wife suffered from chronic pain from an undiscovered spiral spinal fracture for years before her brain cancer diagnosis. It astounded me how many in our circle of family and friends tossed my wife's feelings aside as they 'decided' what was 'really' her problem. I believe it is far too common an occurrence and the impacts can last a long, long time.

Most in my wife's and my family chalked her chronic pain up to her being a hypochondriac or attention seeker. It was frustrating, angering, and sad for both of us. We did our best to work through our feelings on this, but there was no doubt it was damaging to our relationships with those individuals.

Luckily my wife had the courage of her own convictions to stick with her care plans, etc on her own and with me as her wingman.

It wasn't until years after her brain cancer diagnosis that some of those people acknowledged her journey through chronic pain -- and several never did. Sad for my wife, but sadder for the others.

The isolation breaking is what first drew me here to Connect!

Peace & Strength

Hello @marield65 My wife used a fentanol patch for several months towards tge end of her illness. She slternated wearing tgem on her shoulder blades. She also found relief through the use of ABHR suppositories and then the same in a cream applied to her neck or inside of her wrists.

Peace & Strength