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The Caregivers' Guilt Dumpster - Open for business

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@looneyjm1956
Hello. You post really caught my attention..Since January my spouse has either been in the hospital, rehab or back to the hospital.I just found out that he has LBD and Metabolic Encephalopathy. I am devasted .Our Anniversary is tomorrow. He is confused and sometimes know me. He definately has Sundowners/ LBD. He does not make sence or even no what to say. He has become paranoid , combative and delusional. He was so different as if it happened in a dream and I would wake up and I would have my husband back. I am so very sad. He is in Pallative/ Hospice as of a couple of days ago. It is the hardest decision I have ever had to make. All of you please look at your love one and love them and know this is inevitable. Tears have been shed and sometimes I wonder is this the day he goes to end of his journey of Life. Sad but not giving up hope that he will smile or ask for his favorite candy or say " Honey, I love you" .

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Replies to "@looneyjm1956 Hello. You post really caught my attention..Since January my spouse has either been in the..."

@sillyblone Hi. My husband has not been diagnosed with anything but Metabolic Encephalopathy. Jan 27 he had a fusion. He was pretty much perfectly normal, except for minor confusions at time, which I was told was typical for an 80 yr old. He had not been diagnosed prior to surgery, but doctors were told he could not tolerate drugs which we learned from a previous hospital stay. He had a red wristband indicating same. Somehow, he was given benadryl overnight, and then a muscle relaxer 2x, and no one could tell me who ordered this. The end result was a 3 day stay turned into a 10 day stay, and then when he was discharged, we had to see a neurologist who diagnosed him. Now, 2 months after surgery, his back is great, but he is showing many of the signs that you mention. What should I do? We have another neurology appointment this week. This all has happened since discharge. Any suggestions? I am trying to write down all symptoms for the neuro appointment.