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Newly Diagnosed DCIS Stage 0, Grade 2: Still reeling

Posted by birdie60 @birdie60, Jan 25 9:46am

I'm still numb from just finding out this past Friday, but trying to do my due diligence to research everything i can find. My mother had something similar 14 yrs ago but she doesn't remember what kind it was. She had a Mastectomy on the one breast with reconstruction. Cancer free since then. No Chemo.

I'm supposed to meet with the Oncologist in my local town next Wednesday, but honestly, I think I would prefer to go to the #1 Cancer Center in NC in Winston-Salem.

If you requested to get a 2nd opinion, did anyone have any issues with wanting to go somewhere different than what was initially set up for you ?

The biopsy they took, it had the calcification cluster. There are other spots, but not cluster in the same breast. I have dense breast tissue and actually concerned about the other breast.

Is it too much to ask for an MRI on the affected breast and the other breast to determine if there is any additional underlying condition in both breasts?

I'm just beginning this journey. I think I'm still in shock, but not actually surprised. I think I knew when i went back for 2nd mammogram magnification that it would come back positive.
I cried a little when the navigation nurse told me the results were positive. I just haven't been able to cry really... I just feel overwhelmed and numb.

sorry for the ramble. I'm just not sure what to do....

Please feel free to share your story journey....

Interested in more discussions like this? Go to the Breast Cancer Support Group.

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panarosmith | @panarosmith | Feb 9 2:31pm
In reply to @sunshine1313 "@panarosmith I am hoping my story will be like yours I am so scared. I had..." + (show)
Profile picture for sunshine1313 @sunshine1313

@panarosmith I am hoping my story will be like yours I am so scared. I had a mamo last year and was fine but I have dense breasts. They did the call back this year then a sonogram right after the additional slides. Sent for core needle biopsy the results came back I have estrogen positive progestrin positive HER2 negative breast cancer. Waiting for MRI next week and then hoping it is only the one spot and then the lumpectomy and then the drugs..I am so scared about all phases of this. I am scared the MRI will show lymph nodes affected and I am scared of the estrogen blocker. I love how you say you are feeling great. I had to imediatly stop taking my hormone replacement estrogen so I am going into cold turkey menopause symptoms. How did you deal with all of this. I feel like I am doomed and and depressed and crying a lot.

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@sunshine1313 ,
I understand how distressed you must feel. This is the hardest part-the not knowing. Once you have all the information and you have a team you trust - it's just a matter of taking the next step. The lumpectomy was surprisingly less painful than I thought and recovery was short. Radiation was also very easy for me.
I was already done with menopause and not on hormone replacement so I'm sure there's not much estrogen to block.
In health,
Carol

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Moderator
Justin McClanahan, Moderator | @JustinMcClanahan | Feb 9 3:19pm
In reply to @panarosmith "@sunshine1313 , I understand how distressed you must feel. This is the hardest part-the not knowing...." + (show)
Profile picture for panarosmith @panarosmith

@sunshine1313 ,
I understand how distressed you must feel. This is the hardest part-the not knowing. Once you have all the information and you have a team you trust - it's just a matter of taking the next step. The lumpectomy was surprisingly less painful than I thought and recovery was short. Radiation was also very easy for me.
I was already done with menopause and not on hormone replacement so I'm sure there's not much estrogen to block.
In health,
Carol

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@panarosmith, you'll notice that I removed your personal email. Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support.

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panarosmith | @panarosmith | Feb 9 4:37pm
In reply to @JustinMcClanahan "@panarosmith, you'll notice that I removed your personal email. Connect is a public forum. We recommend..." + (show)
Profile picture for Justin McClanahan, Moderator @JustinMcClanahan

@panarosmith, you'll notice that I removed your personal email. Connect is a public forum. We recommend sharing personal contact information using the secure private message function. I might also add that by sharing here in the forum, you are connecting with several people where all can benefit from group support.

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@JustinMcClanahan ,
So sorry. I completely understand.
Thank you for the message.
Carol

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