PN and trembling/ hands shaking

Posted by stallen @stallen, Feb 4 9:49am

Hi …I've had PN for 9 years. I’ve noticed as it progressed that I have trembling shaky hands and even arms a bit. I also seem to get nervous easier …with anxiety. Does anyone else experience this with their progressing PN? Have the DRS done anything for you? Txs
Steve

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artemis1886 | @artemis1886 | Feb 7 10:41am

In reply to @stallen "@artemis1886 I’ve had several nerve conduction tests, 2 full blood panels showing no autoimmune and several..." + (show)

@stallen what medications are you on a lot of them can cause neuropathy they list it as tingling and I forget the other word may be numbness being pre diabetic can cause neuropathy and some blood lresssure meds cause it

artemis1886 | @artemis1886 | Feb 7 10:43am

In reply to @stallen "@artemis1886 Generally IVIG is used for autoimmune right?" + (show)

@stallen IVIG can be used for more than autoimmune. It’s hard to find a neurological administrator it. My rheumatologist is ordering it. Once on it it’s for life. You goof it comes back worse

donhills2113 | @donhills2113 | Feb 8 6:50pm

My neuropathy has progressed quickly, about a year. My right foot is mostly numb, which I do physical therapy and supplements, etc... for and it helps. My tremors vary from the occasional extreme shakes where I can't eat with utensils or write legibly. To the constant "nerves" that affect my pool game noticeably. I love pool, it's extremely important to me.

stallen | @stallen | Feb 8 7:26pm

In reply to @donhills2113 "My neuropathy has progressed quickly, about a year. My right foot is mostly numb, which I..." + (show)

@donhills2113
Sorry to hear about your neuropathy Don. Were you given a cause? I’ve had mine for 9 yrs in April….no specific diagnosis although I am pre diabetes but my neurologist has never pinned it in that. My rate of progression seems to have ramped up. Best wishes to you in the struggle.
Steve

John, Volunteer Mentor | @johnbishop | Feb 9 7:45am

In reply to @stallen "@donhills2113 Sorry to hear about your neuropathy Don. Were you given a cause? I’ve had mine..." + (show)

@stallen - I have idiopathic small fiber peripheral neuropathy and I also have been in the pre-diabetic category most of my adult life. What the doctors never mentioned to me was that if you are in the pre-diabetes category you also fit into the Metabolic Syndrome which includes diabetes and has a connection with neuropathy and other neurological conditions. Here's some references if you want to learn more about it.
-- The Metabolic Syndrome and Neuropathy: Therapeutic Challenges and Opportunities: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3881591/
-- Metabolic syndrome as a risk factor for neurological disorders
https://pubmed.ncbi.nlm.nih.gov/21997383/