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Looking for long-term Transplant success stories
Transplants | Last Active: Apr 17 10:47pm | Replies (33)Comment receiving replies
@tiabean
You are on your way to your own long term transplant success story! Two years with your new liver is fantastic, especially hearing that, "It gets better and better every day."
As for each of us with a transplant, there were struggles and hard times that we experienced along the way. Was there anything that you wished that you would have known ahead of time that might have helped prepare you for post transplant living?
Replies to "@tiabean You are on your way to your own long term transplant success story! Two years..."
@rosemarya In August 2024, I had acute liver failure due to reasons that still remain unknown. I went from a fit 185 lb, 59 year old man to a guy with a maxed out MELD score in a matter of weeks. After the transplant, I lost 50 lbs and it scared the heck out of me.
I wish I knew the significant weight loss is fairly common. It's due to your body cannibalizing muscle and fat to get the fuel it needs to do the internal repairs.
After the transplant, focus on moving but do not start pushing yourself with intense workouts until you begin regaining weight. If you're like me and worried about how you're going to rebuild muscle as an old person, don't. Your muscle really does come back on its own. The doctor refer to it as real "muscle memory.'
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@rosemarya I think knowing about communities, like this one, are our there is immense. I would have taken the hardest times with more confidence that others had done it. The feeling that you are alone going through it is really rough.