1. < Lung Cancer
Profile picture for babs1956

Anyone taking Tagrisso for Lung Cancer?

Posted by babs1956 @babs1956, Jan 27, 2025

Is There anyone taking Tagrisso And feeling well on it. I’m taking 40 mg of Tagrisso I have a little bit of Dizziness. I was on 80 mg but I developed a lot of bruising on my legs so my doctor put me On 40 mg. Is this a good drug?

Thank you so much,
Barbara

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Profile picture for mamajite
mamajite | @mamajite | Feb 4 2:06pm
In reply to @vking "I have been on Tagrisso for 2 1/2 years. For the last 9 months, my Pet..." + (show)
Profile picture for vking @vking

I have been on Tagrisso for 2 1/2 years. For the last 9 months, my Pet Scans have shown the cancer to be "inactive" (doctor's term). My side affects started about a year on the drug. Worse was diarrhea for almost 6 months. I finally found a supplement that stopped the diarrhea. Now, I am dealing with mouths sores. I get 4 or 5 at a times and worst ones are on tongue. I cannot eat or talk for around 5 days until they start to get better. Then, they take me off the Tagrisso for 10 days and they go away. But, then come back in a few months. Use backing soda to relieve the pain and it does help, but still still takes 20 to 12 days to recover. Has anyone found a way to prevent the mouths sores or a treatment to make them go away faster?

Jump to this post

@vking this has helped me when I have had mouth sores. for some reason, they don't normally prescribe it, but I went rogue. 😅🤫
https://www.goodrx.com/oralone/what-is

REPLY
Profile picture for vking
vking | @vking | Feb 5 7:38am

It is called EMMA, formulated by a gastro dr. I take 2 a day and it works for me. I am lactose intolerant, but when I take these I can eat milk products with no problem. I can not take imodium, makes me very ill, so I had to find something else.

REPLY
Profile picture for debgibson
debgibson | @debgibson | Feb 6 12:45am
In reply to @vking "I have been on Tagrisso for 2 1/2 years. For the last 9 months, my Pet..." + (show)
Profile picture for vking @vking

I have been on Tagrisso for 2 1/2 years. For the last 9 months, my Pet Scans have shown the cancer to be "inactive" (doctor's term). My side affects started about a year on the drug. Worse was diarrhea for almost 6 months. I finally found a supplement that stopped the diarrhea. Now, I am dealing with mouths sores. I get 4 or 5 at a times and worst ones are on tongue. I cannot eat or talk for around 5 days until they start to get better. Then, they take me off the Tagrisso for 10 days and they go away. But, then come back in a few months. Use backing soda to relieve the pain and it does help, but still still takes 20 to 12 days to recover. Has anyone found a way to prevent the mouths sores or a treatment to make them go away faster?

Jump to this post

@vking I've found a mouth wash called Andolex C which contains benzydamine HCl (for pain/swelling) and Chlorhexidine gluconate (anti bacterial) is excellent. I keep it in my mouth while I shower at night and by morning my mouth is painless. I think it's made in South Africa (I live in Namibia) but perhaps there's something similar where you are?

REPLY
View MoreView Less
Please sign in or register to post a reply.