Thank you.
Do you feel ok on this regime?
Are the prescription salt pills buffered? If I don't have buffered . the pills make me very nauseous.
i take seven (500mg)
Salt pills a day.
Have you ever been told other minerals in your body are low?
Namely:
-Potassium
-phosphorus
-Sodium
I was recently DX w/SIADH.
-Sodium
-Potassium &
-Phosphorus
had been below ‘normal’ levels for three years. I was rushed to ER several times, given IV fluids, treated symptomatically, my stays ranged from a few hours to four days.
Finally when I refused to see the same ‘hospitalist’ for the fourth time, I asked for another MD’s opinion. That’s when I was DX.
SIADH
That DX should be considered; a second or third opinion should be also. Be your own ‘patient advocate’ !
@catsaloud
Hi there — great that you're gathering information. Here's a lab list you can bring to your doctor. It covers your concerns about low sodium, burning tongue, and recurrent UTIs, while also looking into related nutrients, hormones, and potential underlying causes.
Electrolyte & Mineral Panel
Serum Sodium
Serum Potassium
Serum Magnesium
Serum Calcium (optional but helpful)
Chloride (usually included in a basic panel)
Nutritional Status
Vitamin B12
Folate
Iron Panel: Serum Iron, Ferritin, Total Iron Binding Capacity (TIBC)
Zinc
Vitamin D (optional but helpful for immune and nerve health)
Endocrine / Hormonal Function
Thyroid Panel: TSH, Free T3, Free T4
Adrenal Function: AM Cortisol (fasting), ACTH
Sex Hormones (especially if peri- or postmenopausal): Estradiol, FSH, LH, Progesterone (optional), Testosterone (free + total, optional)
Urinary Health
Urinalysis (UA)
Urine Culture & Sensitivity
Kidney Function Tests: Creatinine, BUN, eGFR
Ask your PCPs if they can run a Complete Metabolic Panel (CMP), which includes many basic electrolytes and kidney/liver markers.
Have you ever been told other minerals in your body are low?
Namely:
-Potassium
-phosphorus
-Sodium
I was recently DX w/SIADH.
-Sodium
-Potassium &
-Phosphorus
had been below ‘normal’ levels for three years. I was rushed to ER several times, given IV fluids, treated symptomatically, my stays ranged from a few hours to four days.
Finally when I refused to see the same ‘hospitalist’ for the fourth time, I asked for another MD’s opinion. That’s when I was DX.
SIADH
That DX should be considered; a second or third opinion should be also. Be your own ‘patient advocate’ !
@swalex
My DX is not associated with Addisons Disease.
SIADH is a pituitary gland disorder…not an autoimmune disease like Addisons. Very dissimilar to yours.
Mine is under control & DX in hospital seven years ago.
@swalex
My DX is not associated with Addisons Disease.
SIADH is a pituitary gland disorder…not an autoimmune disease like Addisons. Very dissimilar to yours.
Mine is under control & DX in hospital seven years ago.
@mmleal his is it under control? I too have SIADH and have had it act up for no reason and it scars me. ( already had one accident because of it. 121 level) How do you control it?
@mmleal his is it under control? I too have SIADH and have had it act up for no reason and it scars me. ( already had one accident because of it. 121 level) How do you control it?
@novakp52
I limit my fluid intake to 1000 mls a day.
In summer I can increase it to 1200 mls a day. ALL FLUIDS you intake must be counted. There’s an app on my cell that helps. You can set it up to remind you to drink water or any fluid.
I recommend you speak with your nephrologist or urologist. I live in a climate with 100°plus temps. Your dr(s) are your best go to. I tell you what works for me…all pts are different.
@novakp52
I limit my fluid intake to 1000 mls a day.
In summer I can increase it to 1200 mls a day. ALL FLUIDS you intake must be counted. There’s an app on my cell that helps. You can set it up to remind you to drink water or any fluid.
I recommend you speak with your nephrologist or urologist. I live in a climate with 100°plus temps. Your dr(s) are your best go to. I tell you what works for me…all pts are different.
@mmleal his is it under control? I too have SIADH and have had it act up for no reason and it scars me. ( already had one accident because of it. 121 level) How do you control it?
@novakp52 I have had my sodium level drop to 119, hospitalized several times because of it. I take sodium chloride pills every day, and this has got me through the last ten years. No explanation has ever been found. When I begin to feel weak, faint or sick, I take an extra pill each day until I feel better. Even an ordinary cold will have an effect on my levels.
@mmleal his is it under control? I too have SIADH and have had it act up for no reason and it scars me. ( already had one accident because of it. 121 level) How do you control it?
@novakp52
A sodium of 121 is dangerously low. Having an accident at that level makes sense medically, and it’s not a personal failure. Anyone would be shaken by that.
I want to ask you one gentle question (only one):
Do you currently have a clear prevention plan from your doctor (fluid target, sodium strategy, and what to do if symptoms start)—or are you mostly reacting when it happens?
Your answer helps in a useful situation, not just textbook advice.
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Good luck
We need each other.
G.h.
@catsaloud
Have you ever been told other minerals in your body are low?
Namely:
-Potassium
-phosphorus
-Sodium
I was recently DX w/SIADH.
-Sodium
-Potassium &
-Phosphorus
had been below ‘normal’ levels for three years. I was rushed to ER several times, given IV fluids, treated symptomatically, my stays ranged from a few hours to four days.
Finally when I refused to see the same ‘hospitalist’ for the fourth time, I asked for another MD’s opinion. That’s when I was DX.
SIADH
That DX should be considered; a second or third opinion should be also. Be your own ‘patient advocate’ !
@catsaloud
Hi there — great that you're gathering information. Here's a lab list you can bring to your doctor. It covers your concerns about low sodium, burning tongue, and recurrent UTIs, while also looking into related nutrients, hormones, and potential underlying causes.
Electrolyte & Mineral Panel
Serum Sodium
Serum Potassium
Serum Magnesium
Serum Calcium (optional but helpful)
Chloride (usually included in a basic panel)
Nutritional Status
Vitamin B12
Folate
Iron Panel: Serum Iron, Ferritin, Total Iron Binding Capacity (TIBC)
Zinc
Vitamin D (optional but helpful for immune and nerve health)
Endocrine / Hormonal Function
Thyroid Panel: TSH, Free T3, Free T4
Adrenal Function: AM Cortisol (fasting), ACTH
Sex Hormones (especially if peri- or postmenopausal): Estradiol, FSH, LH, Progesterone (optional), Testosterone (free + total, optional)
Urinary Health
Urinalysis (UA)
Urine Culture & Sensitivity
Kidney Function Tests: Creatinine, BUN, eGFR
Ask your PCPs if they can run a Complete Metabolic Panel (CMP), which includes many basic electrolytes and kidney/liver markers.
@mmleal
This is my personal experience with low and high minerals, leading to:
Addison’s Disease: A Rare but Life-Threatening Endocrine Emergency
https://swaresearch.blogspot.com/2026/01/key-clinical-signs-of-addisons-disease.html
@swalex
My DX is not associated with Addisons Disease.
SIADH is a pituitary gland disorder…not an autoimmune disease like Addisons. Very dissimilar to yours.
Mine is under control & DX in hospital seven years ago.
-
Like -
Helpful -
Hug
1 Reaction@mmleal his is it under control? I too have SIADH and have had it act up for no reason and it scars me. ( already had one accident because of it. 121 level) How do you control it?
-
Like -
Helpful -
Hug
2 Reactions@novakp52
I limit my fluid intake to 1000 mls a day.
In summer I can increase it to 1200 mls a day. ALL FLUIDS you intake must be counted. There’s an app on my cell that helps. You can set it up to remind you to drink water or any fluid.
I recommend you speak with your nephrologist or urologist. I live in a climate with 100°plus temps. Your dr(s) are your best go to. I tell you what works for me…all pts are different.
-
Like -
Helpful -
Hug
1 Reaction@mmleal Thank you for the information.
@novakp52 I have had my sodium level drop to 119, hospitalized several times because of it. I take sodium chloride pills every day, and this has got me through the last ten years. No explanation has ever been found. When I begin to feel weak, faint or sick, I take an extra pill each day until I feel better. Even an ordinary cold will have an effect on my levels.
@novakp52
A sodium of 121 is dangerously low. Having an accident at that level makes sense medically, and it’s not a personal failure. Anyone would be shaken by that.
I want to ask you one gentle question (only one):
Do you currently have a clear prevention plan from your doctor (fluid target, sodium strategy, and what to do if symptoms start)—or are you mostly reacting when it happens?
Your answer helps in a useful situation, not just textbook advice.