I was on prednisone for 6 months with 30mg as the high dose. I tapered off in October w help of Kevzara. I started to notice hair loss in December. For how long did you hair continue to fall out?
I should have consulted Google AI. This is reassuring for me, fingers crossed.
"Hair loss two months after stopping prednisone is likely telogen effluvium, a temporary condition where the stress of stopping the medication forces hair follicles into a resting phase, causing shedding. This shedding often appears 2–4 months after the trigger, which includes hormonal changes from stopping medication, leading to temporary thinning. "
Using Actemra was a benefit over using prednisone. I do notice a difference in the inflammation satisfaction. Minor breakthrough headaches, but they seem to be under control otherwise
I was on prednisone for 6 months with 30mg as the high dose. I tapered off in October w help of Kevzara. I started to notice hair loss in December. For how long did you hair continue to fall out?
@lsa22 I would say you can be reassured, anecdotally at least from this forum and other sites , prednisone hair loss reverses once pred is out of the system and hormones can return to normal.
My experience is
6 weeks of heavy hair shedding at the end of a 3month course of pred , til hair loss stopped suddenly and I could feel bristles of new hair growth through the 50% off my hair that hadn’t fallen out .
That was 12ths ago
New growth was and remains curly ( whereas my hair was previously straight )
@carlarosie
Hi. My doc wants me to go Actemera for GCA/large vessel vascular disease in the aortic artery in heart. So many warnings. Did you find it easy to manage? Any issues? Thank you Ellen
@elleninz
Hi my diagnosis is the same as yours, but with PMR too.
Actemera ( initially & concurrent with Pred) successfully treated my disease , I went quickly into a remission from GCA /PMR , and quickly tapered off prednisone.
My experience was Virtually no side effects from 12mths on Actemera , immunocompromised of course, affected liver values in blood tests ie slightly raised cholesterol . All minimal though , nothing requiring further medical management. All blood values back to normal after 6weeks off Actemera and I’ve remained in medication free remission .
I believe Actemera saved me from worse side effects that can come from extended use of prednisone , and gave me better quality of life .
Actemera worked so well for me , hoping & wishing the same treatment success for others .
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FYI. I have been on prednisone for three years now
I was on prednisone for 6 months with 30mg as the high dose. I tapered off in October w help of Kevzara. I started to notice hair loss in December. For how long did you hair continue to fall out?
I should have consulted Google AI. This is reassuring for me, fingers crossed.
"Hair loss two months after stopping prednisone is likely telogen effluvium, a temporary condition where the stress of stopping the medication forces hair follicles into a resting phase, causing shedding. This shedding often appears 2–4 months after the trigger, which includes hormonal changes from stopping medication, leading to temporary thinning. "
Using Actemra was a benefit over using prednisone. I do notice a difference in the inflammation satisfaction. Minor breakthrough headaches, but they seem to be under control otherwise
@lsa22 I would say you can be reassured, anecdotally at least from this forum and other sites , prednisone hair loss reverses once pred is out of the system and hormones can return to normal.
My experience is
6 weeks of heavy hair shedding at the end of a 3month course of pred , til hair loss stopped suddenly and I could feel bristles of new hair growth through the 50% off my hair that hadn’t fallen out .
That was 12ths ago
New growth was and remains curly ( whereas my hair was previously straight )
Just one morePMR / prednisone waiting game !
@elleninz
Hi my diagnosis is the same as yours, but with PMR too.
Actemera ( initially & concurrent with Pred) successfully treated my disease , I went quickly into a remission from GCA /PMR , and quickly tapered off prednisone.
My experience was Virtually no side effects from 12mths on Actemera , immunocompromised of course, affected liver values in blood tests ie slightly raised cholesterol . All minimal though , nothing requiring further medical management. All blood values back to normal after 6weeks off Actemera and I’ve remained in medication free remission .
I believe Actemera saved me from worse side effects that can come from extended use of prednisone , and gave me better quality of life .
Actemera worked so well for me , hoping & wishing the same treatment success for others .
MAYE