SIBO…did it ever go away?

Posted by Kendra @kendra75, May 13, 2025

Hi everyone. Very long story short I recently came back from the Mayo pain rehabilitation program for chronic pain from IBS for the last few years. My question is: while going to many doctors for a diagnosis I did test positive for SIBO. The doctor didn’t think it was the cause of my symptoms however we wanted to treat it of course. I did two rounds of the antibiotic that they often give for SIBO. I was never retested and I never felt any different after the antibiotic. Is it possible that it never went away and could be contributing to my IBS symptoms? Thanks so much for your help! I know you’re not all doctors but would love opinions. Thanks.

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Profile picture for hallward @hallward

@jenatsky
I am interested in trying the Fodzyme powder but my insurance won't pay for a nutritionist so I've never been able to determine if it's safe and/or effective. Did your nutritionist recommend it? I gather it's worked well for you.
I also have SIBO that I mostly manage via the low Fodmap diet, but eating out is a challenge since garlic is usually in everything and that is the one thing that bothers me the most.
If you don't mind, could you comment on the digestive aid you use before meals?
It's so frustrating that we are pretty much on our own when it comes to SIBO.

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@hallward I paid for the nutritionist out of pocket. Medicare only covers for certain diagnoses. Fodzyme powder costs around $65 but lasts a long time.

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I was diagnosed with SIBO finally. I was given Rifaximin but once I went off, the symptoms returned. The cause of SIBO is a bacteria. Treating the symptoms does nothing once you stop the treatment. It was explained to me that the upper and lower GI tract have different bacteria that is normal. But if the lower GI tract bacteria migrate to the upper GI, problems occcur. My doctor put me on a prebiotic and probiotic. I changed my diet with the help of her nutritionist. I also switched to a low acid coffee called Lifeboost that you can purchase online. I omitted dairy, gluten and sugar. I continue with gluten free products, substituted with sheep or goat milk products and nut milks. And I am very careful with sugar - use stevia instead to sweeten coffee and tea. Check any products I buy for sugar content and keep it to 10% or less. My SIBO has not returned in the past couple of years.
I wish everyone the best - I know that dealing with SIBO is difficult.

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Profile picture for jenatsky @jenatsky

I was able to get over my SIBO hump with the help of a nutritionist, Gourmend spices and broths that contain no onion or garlic bulb remnants. Yes it’s taken about a year and I’m doing OK. I still use a digestive aid before meals and I use Fodzyme powder on some foods and when I go out to eat to protect myself.

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@jenatsky

I would also like to know the digestive aid you use before meals.

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Profile picture for ttheo @ttheo

@rnewman12
Very familiar story. I feel like sibo is a chronic condition more than not. I had a small bowel resection a few years ago and have been dealing with this ever since. My initial diagnosis was methane+ hydrogen. I worked with a nutritionist for over a year. The methane was eliminated with Alimax (garlic) therapy. I took one round of rifaximin for hydrogen, but I don't think it completely eliminated the hydrogen. My doc had me do the biofeedback and pelvic floor stuff which has helped. My biggest issue aside from bloating is almost constant gas. I was thinking of trying simethicone (gasx) for this. Has anyone had any luck taking this? My wife is after me to go back to the gastroenterologist, but I think its a waste of time.

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@ttheo I am pretty sure simethicone will only help your body move the gas through you. It should help relieve the discomfort from cramping and spasms (it helps me), but I don’t think it will reduce the gas or odor.

I had a Whipple procedure two years ago and continue to deal with bloating, cramps, spasms, and other GI issues. I am doing the SIBO breath test tomorrow to see if that is a contributing factor.

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Hello @jenatsky, thank you for your note, and processes you have tried, without positive results.
Whereas I am in the same boat as you and many others, I hope someone replies with processes that actually help reduce or eliminate S.I.B.O.

A nutritionist, per @hallward, is my next attempt.

Thank you All!!!
Rich

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Profile picture for h8bigbiz @h8bigbiz

@jenatsky

I would also like to know the digestive aid you use before meals.

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@h8bigbiz Digestive Gold by Enzymedica

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Profile picture for catchercoach8 @catchercoach8

Hello @jenatsky, thank you for your note, and processes you have tried, without positive results.
Whereas I am in the same boat as you and many others, I hope someone replies with processes that actually help reduce or eliminate S.I.B.O.

A nutritionist, per @hallward, is my next attempt.

Thank you All!!!
Rich

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@catchercoach8 Essentially I cut out the foods and spices identified as medium and high using the FODMAP app until I was relatively normal. Then with guidance of nutritionist I added them back one at a time until I could determine which food items were still bad. For these I sprinkle Fodzyme powder on the culprit item(s) before consuming it. Some items that contain HFCS as an example I completely ignore. Good luck

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Profile picture for catchercoach8 @catchercoach8

Hello @jenatsky, thank you for your note, and processes you have tried, without positive results.
Whereas I am in the same boat as you and many others, I hope someone replies with processes that actually help reduce or eliminate S.I.B.O.

A nutritionist, per @hallward, is my next attempt.

Thank you All!!!
Rich

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@catchercoach8 I don’t think SIBO can be cured like an infection, you just need to learn how to adjust your diet to help maintain your healthy GI homeostasis. It’s how I’m dealing with it at least. Some foods I will just not eat like those containing garlic or onions.

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Profile picture for jenatsky @jenatsky

@h8bigbiz Digestive Gold by Enzymedica

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@jenatsky
I also take this. Does it help? Who knows.

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