Living with lung cancer - Introduce yourself & come say hi

Hello everyone,
My name is Lynn Stevens, and I just received my diagnosis of small cell lung cancer the day before Christmas Eve. I was a 50-year smoker before I quit 4 months ago. I'm using nicotine replacement patches to help me get pass the worst of the cravings. I've been to so many appointments; had procedures and surgery done; tons of scans, etc. now we're down to placing the chemo port next. My mind is in a spin and my body is exhausted. I told my Oncologist that I didn't want him to drag his feet when it came to coming to a diagnosis and treatment. Well he didn't drag his feet! He hit the floor running and he hasn't stopped for a breath yet!
I just need to know does it slow down at some point or does it stay like this until you beat it or it beats you?

My name is Denise Stinson and and had surgery in September with MD Anderson to remove neural endocrine tumors for my lungs. The pathology report diagnosed me DIPNECH. I am looking for a specialist in this area. MD Anderson does not have anyone that specializes in DIPNECH . I was hoping to find a doctor at Mayo to help me with my diagnosis.

Hi Colleen, you might remember me from a few years ago in the Ostomy group. This time I'm joining the Lung Cancer group as my husband has had a CT scan which showed a large ( a bit smaller than a baseball) mass in his lung and also in his liver. This was done over 2 wks ago and have been waiting to get on the schedule for biopsy of the liver. Yesterday we were contacted by an oncologist who, fortunately will see him on Christmas Eve at a Hospital clinic only 12 miles from us. The MRI and PET scans will also be done there in the first week of January. The liver biopsy can't be done until 1/5/26 and 50-60 miles away. We are in our mid-eighties and freeway travel has become daunting for us. He also has macular degeneration so is unable to drive. The MRI is being done on his brain...the oncology scheduler told me they do these on all their cancer patients since the route of lung metastasis can take that route as well as to the liver. I had scheduled him to see our PCP because he was falling asleep on the sofa several times a day, sometimes sitting up. He had also complained about having to stop and rest several times walking through the woods during deer hunting. He has always been active and very strong. He has had a cough ever since I've known him in the 70's but in the last few months seemed to me to be much worse. He refused to see the doctor about it. I am scared beyond words that this is small-cell and has spread to the point of being untreatable. I am scared beyond words. This site has been a daily visit for me since my health issues in 2021/22. Has anyone on this site had positive outcomes with late stage treatment?

@blinken, I just saw your message today. You and your husband have been through a lot this past weeks. Today, I read that you are on the road to get the liver biopsy done. Sending you positive vibes and a virtual hug to let you know I'm thinking of you.

@lls8000 Hi Lisa, thank you for getting back to me so quickly.
I have received counseling but it was for my marriage.
I haven't talked to anyone about my cancer though. I have looked into trauma therapy, but the cost is outrageous! The closest one is 2.5 hrs away. The cancer clinic is 3 hrs away. I can't afford to do both (gas $$).
I was referred to a pulmonologist and she did a Bronchoscopy, December 1st, that's when I was informed that I have cancer. She did a much deeper one, December 8th and passed me off to the cancer clinic. She did a biopsy both times. Now I'm just waiting for further tests before meeting with an oncologist.

Hello to everyone. My name is Cynde and I have had stage 4 lung cancer that had spread to my liver but the last ct scan show no evidence of tumor's on liver. I have been on keytruda carbo and taxol, that stopped working after a year changed treatment to Cyramza and taxotere, been doing alright with this but my white count goes down so having to get the Neulasta shot and Arensep to red count. my team has done a fabulous job of keeping me going for 2 years this march 3rd. I am having a big problem with my legs swelling up where I can not bend my leg to my knees. so started rubbing them pretty hard you could hear a popping sound but my leg swelling went down to where I could bend my legs to my knees feet pretty swollen also, now I am having a horrible itch from waist up but no rash, I have tried clairtin benadryl and all the lotions you can get for itching nothing has helped, it is driving me insane so dr, office sent in rx hydroxyzine hcl 10 mg been on that for 2 days sure hope it helps. so far still itch like crazy, has anyone that has been on cyramza and taxotere had this happen to them all I can think is I am allergic to one of these drugs any advice ? thanks and god bless all of us keep strong and ride along!

@loula Allergy meds don’t work for only thing works seems to be Gabepentin. That itching is so intense I know exactly how you feel please have your doctor prescribe you some so you can get some relief ASAP!

@cc60 , I'm glad that you found a solution that works for you. No one should have to tolerate misery. Were you prescribed the Gabepentin for the rash/itching, and/or additional pain?