My Experience on Evenity for Treating Osteoporosis

Posted by arlene7 @arlene7, Jul 7, 2020

Thought I would share for those considering or on Evenity for osteoporosis:
Afer much research and discussions with my GP and Cardiologist, I have decided to start my treatment with Evenity injections. As with all drugs, there are many side effects. My biggest concerns were stroke and heart attack. However, considering that I do no have any history for either, for me personally, the benefits outweigh the risks. As my GP said to me, "if everyone only thought about the side effects of the drugs, no one would be taking them".

I had my first injections (subcutaneously in the back of each arm) on June 30th. The nurse that administered the injections discussed the drug in depth, along with all the possibilities that may occur. She also mentioned that for all the patients that she has seen, none has had any side effects.

The injections are once a month for only one year, so I'm hoping that this works well for me and I can improve my bone density, especially in my spine, where I need it the most.

My endocronologist has also prescribed Hydrochlorthiazide for my idiopathic hypocalcemia. I have an appointment with an allergist this month to confirm whether I still have an allergy to sulfa drugs, since this drug contains sulfa. Apart from this I take D3 orally and try to obtain additional calcium through foods not supplements. Trying to walk 3-4 times a week and will begin with a few weight bearing exercises.

My journey began September, 2019 when I was diagnosed with severe osteoporosis. After waiting to see three doctors, receiving three denials from insurance company for Evenity, which took several months, I am hopefully on my way for a favorful outcome.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

Profile picture for singingbones @singingbones

@yvettemas1948 - I reluctantly started the Evenity course of injections after a lot of pressure from 2 drs. Like you, I've rarely taken anything but the occasional aspirin or antibiotic when needed. I do take some vitamins/supplements as recommended by an integrative dr.

However, as soon as the year is over, I plan to start taking the over-the-counter mineral Strontium Citrate (not to be confused w/other forms of strontium used in the UK). I've read many encouraging first-hand success stories from users on Inspire.com as well as medical publications.

There's a physician-sold line of vitamins/supplements called OrthoMolecular products (top of the line, guaranteed efficacy, expensive, sometimes available at a compound pharmacy). When I discovered that they also sell a product called Strontium I read thru the Benefit Sheet provided where it cited studies done on this mineral. This info validated everything else I had already researched, but was sort of the icing on the cake for me.

I've never been on any other bone drug. I've had most of the side effects that are listed w/Evenity (headaches, hair loss, bone ache, etc)...none of which I had before. Unless these side effects become adverse reactions, I plan to finish the course. In the meantime, I'm increasing my exercises & hormones designed for bone health.

Strontium citrate is a very inexpensive mineral without the hefty price tag of OrthoMolecular products. Look for ones that have the least amount of additives.

Blessings on your journey!

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@singingbones How are you going on Evenity, and have you started Strontium yet ? I have refused all the drugs the Drs have wanted me to start for 30yrs, when Osteoporosis was 1st picked up. The necrosis of the jaw was something which really put me off all the Osteoporosis drugs. the Drs have wanted me to start Evenity since Oct 2024 after a fall from a seizure which started 20 years ago after a TBI caused from a DV assault.
The drugs for seizures took 2 a year to around 2 a month. I stopped all meds for seizures after 8 years in 2012 as none of the drugs were helping & some were making the seizures worse.
I have lost trust in all medications & a lot of Drs too as I have never wanted to take any drugs during my life either. I was put on a anti depressant a few years ago but stopped after 1 week because of s/e.
I did research again recently on Evenity & have still refused to take them after what I had read from various Drs & people who had taken the drug. It was mainly because you have to take another drug so you don't loose the affects of this one.

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Profile picture for grammy9 @grammy9

@pyates
Thank you! My doctor is set on Prolia and I don't want to do that. He said it would only be for 3 to 5 years. I hear differently from everyone else!!!

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@grammy9 Are you going to start Prolia? I have not started on any of the drugs which have been recommended over the last 30 years. I have started some research on Evenity

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Profile picture for laura @laura1961

@grammy9 Are you going to start Prolia? I have not started on any of the drugs which have been recommended over the last 30 years. I have started some research on Evenity

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@laura1961 yes I am going to do the Prolia. I have 2 more Evenity injections. Evenity was wonderful...no issues at all.

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Profile picture for laura @laura1961

@singingbones How are you going on Evenity, and have you started Strontium yet ? I have refused all the drugs the Drs have wanted me to start for 30yrs, when Osteoporosis was 1st picked up. The necrosis of the jaw was something which really put me off all the Osteoporosis drugs. the Drs have wanted me to start Evenity since Oct 2024 after a fall from a seizure which started 20 years ago after a TBI caused from a DV assault.
The drugs for seizures took 2 a year to around 2 a month. I stopped all meds for seizures after 8 years in 2012 as none of the drugs were helping & some were making the seizures worse.
I have lost trust in all medications & a lot of Drs too as I have never wanted to take any drugs during my life either. I was put on a anti depressant a few years ago but stopped after 1 week because of s/e.
I did research again recently on Evenity & have still refused to take them after what I had read from various Drs & people who had taken the drug. It was mainly because you have to take another drug so you don't loose the affects of this one.

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@laura1961 - I still have 5 more Evenity injections to go, so I can't start Strontium Citrate until then. I have not had what they call adverse reactions to Evenity, but I have had many of the side effects. I just don't like that a drug can do so much to my body. And I certainly don't want to introduce another harsh drug into my body to maintain gains.

I plan to wait a month after my last injection and then start SC. I'm also having my hormones reevaluated in light of bone integrity. Both SC and HRT seem like more natural approaches to addressing osteoporosis.

I'll get a REMS scan after approx 6-mo to determine if I'm on the right path or not.

Did you check out inspire.com to read about the success stories for SC?
https://www.inspire.com/m/Kathleen1314/journal/d69831-strontium-users-stories-3-alternative-to-pharma-meds/reply/11776557048344733497/

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Profile picture for singingbones @singingbones

@laura1961 - I still have 5 more Evenity injections to go, so I can't start Strontium Citrate until then. I have not had what they call adverse reactions to Evenity, but I have had many of the side effects. I just don't like that a drug can do so much to my body. And I certainly don't want to introduce another harsh drug into my body to maintain gains.

I plan to wait a month after my last injection and then start SC. I'm also having my hormones reevaluated in light of bone integrity. Both SC and HRT seem like more natural approaches to addressing osteoporosis.

I'll get a REMS scan after approx 6-mo to determine if I'm on the right path or not.

Did you check out inspire.com to read about the success stories for SC?
https://www.inspire.com/m/Kathleen1314/journal/d69831-strontium-users-stories-3-alternative-to-pharma-meds/reply/11776557048344733497/

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@singingbones Thank you so much for that link I have joined the site & will do some researching into Strontium on that site when I get some time over the next week. I hope this all works for you. It is hard when you keep refusing the drugs the Drs recommend for various illness's like we have to do. We then have to try to work these things out for ourselves.

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Profile picture for grammy9 @grammy9

@laura1961 yes I am going to do the Prolia. I have 2 more Evenity injections. Evenity was wonderful...no issues at all.

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@grammy9 then why am I so scared...already been dx with coronary artery disease
But I'm So happy to read that's been good for you and all Best Wishes for restored bones --- how old are you? I'm 72.5. Thank you

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Profile picture for laura @laura1961

@singingbones Thank you so much for that link I have joined the site & will do some researching into Strontium on that site when I get some time over the next week. I hope this all works for you. It is hard when you keep refusing the drugs the Drs recommend for various illness's like we have to do. We then have to try to work these things out for ourselves.

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@laura1961 - Yes, I'd prefer to get my dr's blessing, but in the meantime I'm reading every medical publication and health forum that I find to broaden my understanding.

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Profile picture for laura @laura1961

@grammy9 Are you going to start Prolia? I have not started on any of the drugs which have been recommended over the last 30 years. I have started some research on Evenity

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@laura1961 trying to do my research while hearing from very pro-Evenity bone NP ...I'm glad this board is here

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Profile picture for passerby @passerby

@grammy9 then why am I so scared...already been dx with coronary artery disease
But I'm So happy to read that's been good for you and all Best Wishes for restored bones --- how old are you? I'm 72.5. Thank you

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@passerby Trust me if took me a year to start Evenity, I was so scared. I don't have any heart issues though. I did get an ekg and a heart scan prior. Evenity injections are no fun but I just don't have many side effects and definitely would do again is it was available. I am 63 .

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Profile picture for grammy9 @grammy9

@passerby Trust me if took me a year to start Evenity, I was so scared. I don't have any heart issues though. I did get an ekg and a heart scan prior. Evenity injections are no fun but I just don't have many side effects and definitely would do again is it was available. I am 63 .

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@grammy9 I too am on Evenity ( following Tymlos) and just about to complete the course of treatment. SIde effects were minor and I feel it was a good choice for me. My CT and DEXA will be done next month to ascertain results.
I am sorry the injestions were tough for you. I found that the 'how the technician adminstered the injection' determined how comfortable it was. and if there was any resdual tenderness.
I took the shots in the belly where there is some fat. I was lucky and usually got a gal who was skilled, fast and easy.- relatively pain free. I had others who made it a painful and uncomfortable and left me sore and swollen. . SO make sure to ask questions and find the best technician for you. Sednignpostive enegty for your healing.

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