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Please is there anyone diagnosed with chronic granulomatous disease?

Blood Cancers & Disorders | Last Active: Feb 1 1:11pm | Replies (15)
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Profile picture for nolablance @nolablance

Hi, I have recently been diagnosed with this disease (chronic granulomatous disease) and would like to find out more. I have no symptoms other than a rash which has broken out on the top of my legs and continued up my body and my underarms. Do you have this as well?
Nola

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Replies to "Hi, I have recently been diagnosed with this disease (chronic granulomatous disease) and would like to..."
Lori, Volunteer Mentor | @loribmt | Jan 31 8:43am

@nolablance Hi Nola, According to the Mayo Clinic website (and other credible sources) Chronic Granulomatous disease is genetic condition in which certain infection-fighting white blood cells don't work properly. That can result in frequent infections, including rashes.

Here is the article from Mayo: (there are 3 pages)
https://www.mayoclinic.org/diseases-conditions/chronic-granulomatous-disease/symptoms-causes/syc-20355817
What tests used to diagnose your condition? Are you currently taking any treatments for your rash such as antibiotics?

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mumblipeg | @mumblipeg | Feb 1 11:19am

@nolablance This is an interesting find! I do have Granuloma Anulare on my forearms and elbows periodically as well as Essential Thrombocythemia with JAK2mutation; I have had a complete thyroidectomy (colloid adenoma) and hysterectomy due to large fibroids present. I do believe this is all related! The only relief for my GA itchy rash is an occasional prednisone. It will flare up and come and go but remains just visible under my skin.
Good luck to you in getting some help and relief. I do believe it cycles and at the present time, mine is dormant while I fight ET.

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